This article aims to explore the important theme of uncertainty and how this is experienced by parents of children with long-term disability or illness. It also aims to consider how health professionals might offer support to parents to manage their uncertainty without taking away their hope.

中文翻译：

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管理与成为长期残疾儿童的父母相关的不确定性

本文旨在探讨不确定性这一重要主题，以及长期残疾或患病儿童的父母如何体验这种不确定性。它还旨在考虑卫生专业人员如何在不夺走他们希望的情况下为父母提供支持以管理他们的不确定性。