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Psychosocial burden of neglected tropical diseases in eastern Colombia: an explorative qualitative study in persons affected by leprosy, cutaneous leishmaniasis and Chagas disease
Global Mental Health ( IF 3.9 ) Pub Date : 2021-06-18 , DOI: 10.1017/gmh.2021.18
Robin van Wijk 1 , Lena van Selm 1 , Martha C Barbosa 2 , Wim H van Brakel 1 , Mitzi Waltz 3 , Karl Philipp Puchner 4, 5
Affiliation  

Background Leprosy, cutaneous leishmaniasis (CL) and Chagas disease (CD) are neglected tropical diseases (NTDs) with a high psychosocial burden in Norte de Santander and Arauca in Colombia. This study provides insights into affected persons' feelings, perceptions and experiences to better understand the nature of this burden. Methods In 2018, 34 leprosy, CD and CL patients participated in four focus groups discussing the influence of the disease on mental well-being, social participation and stigma. Additionally, 13 leprosy patients participated in semi-structured interviews to further explore the health-related stigma related to this disease. Audio recordings were transcribed verbatim, and open coding was used to identify the most relevant categories and themes. Results Persons suffering from CD reported that their mental distress was mainly caused by impairments and stress related to the progressive and incurable nature of the disease. Persons affected by CL perceived the treatment for the disease as having the most impact on their psychosocial well-being. Persons affected by leprosy reported suffering most from anticipated and experienced stigma. Conclusions The findings indicate that these diseases are likely to impose a significant psychosocial burden on patients in the studied regions, even though these vary per condition. Consistent data collection on the psychosocial burden and the sharing of knowledge of effective interventions can contribute to the holistic approach needed to win the fight against NTDs.

中文翻译:

哥伦比亚东部被忽视的热带病的社会心理负担:对麻风病、皮肤利什曼病和南美锥虫病患者的探索性定性研究

背景麻风病、皮肤利什曼病 (CL) 和南美锥虫病 (CD) 是被忽视的热带病 (NTD),在哥伦比亚的北桑坦德 (Norte de Santander) 和阿劳卡 (Arauca) 具有较高的社会心理负担。这项研究提供了对受影响人的感受、看法和经验的见解,以更好地了解这种负担的性质。方法 2018 年,34 名麻风病、CD 和 CL 患者参加了四个焦点小组,讨论该疾病对心理健康、社会参与和耻辱感的影响。此外,13 名麻风病患者参加了半结构化访谈,以进一步探讨与该疾病相关的健康污名。录音被逐字转录,开放编码被用来识别最相关的类别和主题。结果 患有 CD 的人报告说,他们的精神困扰主要是由与疾病的进行性和无法治愈的性质相关的损伤和压力引起的。受 CL 影响的人认为这种疾病的治疗对他们的社会心理健康影响最大。受麻风病影响的人报告说,他们最常遭受预期和经历的耻辱。结论 研究结果表明,这些疾病可能会给研究地区的患者带来重大的社会心理负担,尽管这些疾病因病情而异。关于社会心理负担的一致数据收集和有效干预知识的共享有助于采取整体方法来战胜 NTDs。受 CL 影响的人认为这种疾病的治疗对他们的社会心理健康影响最大。受麻风病影响的人报告说,他们最常遭受预期和经历的耻辱。结论 研究结果表明,这些疾病可能会给研究地区的患者带来重大的社会心理负担,尽管这些疾病因病情而异。关于社会心理负担的一致数据收集和有效干预知识的共享有助于采取整体方法来战胜 NTDs。受 CL 影响的人认为这种疾病的治疗对他们的社会心理健康影响最大。受麻风病影响的人报告说,他们最常遭受预期和经历的耻辱。结论 研究结果表明,这些疾病可能会给研究地区的患者带来重大的社会心理负担,尽管这些疾病因病情而异。关于社会心理负担的一致数据收集和有效干预知识的共享有助于采取整体方法来战胜 NTDs。结论 研究结果表明,这些疾病可能会给研究地区的患者带来重大的社会心理负担,尽管这些疾病因病情而异。关于社会心理负担的一致数据收集和有效干预知识的共享有助于采取整体方法来战胜 NTDs。结论 研究结果表明,这些疾病可能会给研究地区的患者带来重大的社会心理负担,尽管这些疾病因病情而异。关于社会心理负担的一致数据收集和有效干预知识的共享有助于采取整体方法来战胜 NTDs。
更新日期:2021-06-18
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