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Interventions aiming to improve informed decision on prenatal screening and testing: A scoping review of the literature
Journal of Genetic Counseling ( IF 1.9 ) Pub Date : 2021-06-17 , DOI: 10.1002/jgc4.1437
İlknur Yeşilçinar 1 , Memnun Seven 2 , Şeyma İnciser Paşalak 3 , Gülten Güvenç 4
Affiliation  

The aim of this scoping review was to explore interventions and their effect in facilitating decision making on prenatal screening and testing among pregnant women. This review was conducted according to the Joanna Briggs Institute Methods Manual for scoping reviews. Studies published 2000–2019 that consist of interventions to facilitate pregnant women's decision making in prenatal screening and testing were specifically reviewed. A total of 27 studies are included in this scoping review. In these studies, various methods, including face-to-face individual or group interventions, e-Health interventions, video-based interventions, written educational materials, and decision aid interventions, were developed and tested for their effectiveness in facilitating informed decision making on prenatal screening and testing. While these methods appeared to be effective, further studies involving diverse populations are needed to integrate them into practice. Genetic counselors and healthcare providers working with individuals who are referred for genetic education and counseling need to work collaboratively to facilitate informed decisions on prenatal screening of women and/or their partners.

中文翻译:

旨在改善产前筛查和检测知情决策的干预措施:文献综述

该范围审查的目的是探索干预措施及其在促进孕妇产前筛查和检测决策方面的影响。该审查是根据乔安娜布里格斯研究所方法手册进行的范围审查。专门审查了 2000-2019 年发表的研究,其中包括促进孕妇在产前筛查和检测中做出决策的干预措施。本次范围审查共纳入 27 项研究。在这些研究中,开发并测试了各种方法,包括面对面的个人或团体干预、电子健康干预、基于视频的干预、书面教育材料和决策辅助干预,并测试它们在促进知情决策方面的有效性。产前筛查和检测。虽然这些方法似乎是有效的,但需要对不同人群进行进一步的研究,以将它们整合到实践中。与被推荐接受基因教育和咨询的个人合作的遗传咨询师和医疗保健提供者需要合作,以促进对妇女和/或其伴侣的产前筛查做出明智的决定。
更新日期:2021-06-17
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