It is widely recognized that affect and cognition can have a profound influence on information behavior. However, how these factors affect information behavior in the context of chronic, stigmatized conditions is less clear. This study employed a qualitative approach to explore the interrelatedness of affect, cognition, and information behavior among persons with fibromyalgia. Persons with fibromyalgia were recruited using multiple recruitment strategies (e.g., listservs and social media) for an interview study. The interview guided participants to tell their story as they drew a timeline. Data were analyzed using qualitative data analysis methods based on the Grounded Theory Methodology. Participants' narratives illustrated that affect and cognition had diverse effects on participants' information and health behaviors: uncertainty and negative affect promoted information seeking; affect and information facilitated reconceptualization and self-growth; and online venues facilitated venting, gave rise to validating experiences, and provided opportunities to help others. This study's findings contribute to extant knowledge by connecting affect, cognition, and action in long-term health management. The study also provides recommendations for practice: a need to focus on practical management strategies in information provision, develop information resources to address the needs of diverse populations, and promote empathy and awareness concerning invisible conditions.

中文翻译：

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纤维肌痛背景下情感、认知和信息行为之间的相互作用

众所周知，情感和认知会对信息行为产生深远的影响。然而，这些因素如何影响慢性、污名化条件下的信息行为尚不清楚。本研究采用定性方法来探索纤维肌痛患者的情感、认知和信息行为之间的相互关系。使用多种招募策略（例如，列表服务和社交媒体）招募患有纤维肌痛的人进行采访研究。采访引导参与者在绘制时间表时讲述他们的故事。使用基于扎根理论方法的定性数据分析方法分析数据。参与者的叙述表明，情感和认知对参与者的信息和健康行为有不同的影响：不确定性和负面影响促进了信息寻求；情感和信息促进了重新概念化和自我成长；在线场所促进了发泄，产生了验证经验，并提供了帮助他人的机会。本研究的发现通过将长期健康管理中的情感、认知和行动联系起来，为现有知识做出贡献。该研究还提供了实践建议：需要关注信息提供中的实用管理策略，开发信息资源以满足不同人群的需求，并促进对隐形条件的同情和认识。并提供机会帮助他人。本研究的发现通过将长期健康管理中的情感、认知和行动联系起来，为现有知识做出贡献。该研究还提供了实践建议：需要关注信息提供中的实用管理策略，开发信息资源以满足不同人群的需求，并促进对隐形条件的同情和认识。并提供机会帮助他人。本研究的发现通过将长期健康管理中的情感、认知和行动联系起来，为现有知识做出贡献。该研究还提供了实践建议：需要关注信息提供中的实用管理策略，开发信息资源以满足不同人群的需求，并促进对隐形条件的同情和认识。