Breast cancer (BC) is the most common cancer in Latinas and the leading cause of cancer death. Latinas tend to be diagnosed at later stages, receive poorer quality care and have a higher risk of mortality than non-Latina White (NLW) women. Among women with a genetic predisposition to hereditary BC, genetic counseling can be beneficial. Latinas participate in genetic counseling at lower rates than NLW women. The goal of this study was to develop comprehensive, culturally appropriate materials for community health educators (promotores)-led hereditary BC education program for Spanish-speaking Latinas. We developed the curriculum through feedback from 7 focus groups, with a total of 68 participants (35 promotores and 33 community members). We used a mixed-methods approach that relied on quantitative analysis of survey questions and qualitative content analysis of the focus groups transcripts. Pre and post promotores’ training survey responses suggested improvement in the promotores’ cancer-related knowledge. Themes that emerged from the qualitative analyses were (i) barriers to health education and/or care; (ii) importance of educating the Latino community about BC and genetics and (iii) role of the promotores. Future research will further evaluate the impact of the program in promotores’ knowledge and community members’ screening behaviors.

中文翻译：

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社区研究合作，为讲西班牙语的拉丁裔开发基于启动子的遗传性乳腺癌教育计划

乳腺癌（BC）是拉丁裔最常见的癌症，也是癌症死亡的主要原因。与非拉丁裔白人 (NLW) 女性相比，拉丁裔女性往往诊断较晚，接受的护理质量较差，死亡风险更高。对于具有遗传性 BC 遗传倾向的女性，遗传咨询可能是有益的。拉丁裔女性参与遗传咨询的比例低于 NLW 女性。本研究的目标是为社区健康教育者 (promotores) 主导的西班牙语拉丁裔 BC 遗传教育计划开发全面的、文化上适当的材料。我们根据 7 个焦点小组的反馈开发了课程，共有 68 名参与者（35 名发起人和 33 名社区成员）。我们使用了混合方法，依赖于调查问题的定量分析和焦点小组记录的定性内容分析。发起人培训前后的调查结果表明，发起人的癌症相关知识有所提高。定性分析中出现的主题是 (i) 健康教育和/或护理的障碍；(ii) 对拉丁裔社区进行 BC 和遗传学教育的重要性，以及 (iii) 启动子的作用。未来的研究将进一步评估该计划对促销者知识和社区成员筛选行为的影响。