Abstract

Parent-reported satisfaction is an important outcome measure in pediatric neuropsychology; however, self-report of patient experience following lengthy pediatric assessments has been under-investigated. Written at a first grade reading level and utilizing touch screen and read-aloud functionality, a set of 15 operationally-focused items were administered to evaluate pediatric patient experience of neuropsychological and psychological assessment. One-hundred ninety-seven clinically-referred patients (M age = 11.74, SD = 3.17, range = 5.86–19.02 years, 56% male) answered the post-assessment survey. The majority of patients (n = 167; 84.77%) accurately completed the initial two validity items, even though many had parent-reported ratings of reading difficulty. More than a third of patients indicated that the assessment made them tired (39%), but fewer patients reported feeling bored (13%) or worried (7%) during testing. Moreover, most patients reported having fun (66%) and many indicated that testing was preferable to other activities typically performed at that same time (i.e., school, homework). Responses to items assessing the child’s interactions with the clinician and the child’s effort provided little variation and were answered in a socially desirable manner. Items that focused upon the child’s personal response to the assessment appointment (e.g., boredom, worry), however, elicited greater variance in patient responding. In general, patient responses did not suggest that assessment was an aversive experience. Overall, these proof of concept findings suggest that most referred pediatric patients, even those with learning issues, may be capable of independently navigating and completing self-report questionnaires while providing differential responses to items assessing clinical experience. Self-report questionnaires appear to be a feasible method for acquiring pediatric patient-reported experiences of assessment.

摘要

家长报告的满意度是儿科神经心理学的一个重要结果指标；然而，在经过长时间的儿科评估后，对患者体验的自我报告一直没有得到充分调查。以一年级阅读水平编写并利用触摸屏和朗读功能，管理一组 15 个以操作为重点的项目，以评估儿科患者的神经心理和心理评估体验。197 名临床转诊患者（M 年龄 = 11.74，SD = 3.17，范围 = 5.86-19.02 岁，56% 男性）回答了评估后调查。大多数患者（n = 167; 84.77%) 准确地完成了最初的两个有效性项目，尽管许多人有家长报告的阅读难度评级。超过三分之一的患者表示评估使他们感到疲倦（39%），但更少的患者报告在测试期间感到无聊（13%）或担心（7%）。此外，大多数患者报告说玩得很开心（66%），许多人表示测试比通常同时进行的其他活动（即学校、家庭作业）更可取。对评估儿童与临床医生的互动和儿童努力的项目的反应几乎没有变化，并以符合社会期望的方式回答。然而，关注孩子对评估预约的个人反应（例如，无聊、担心）的项目会引起患者反应的更大差异。一般来说，患者的反应并不表明评估是一种厌恶的经历。总体而言，这些概念验证结果表明，大多数转诊的儿科患者，即使是有学习问题的患者，也可能能够独立导航和完成自我报告问卷，同时对评估临床经验的项目提供不同的反应。自我报告问卷似乎是获取儿科患者报告的评估经验的可行方法。