Background

Ensuring the quality of interstage management of infants with single ventricle heart disease (SVHD) residing in rural communities is difficult. Tailored care coordination through parental discharge education, formal and informal care team and family communication, adequate access to healthcare, and informed provider handoffs are crucial to the infant's well-being and survival.

Objective

To discuss the state of the science related to care coordination factors and infant wellbeing during the interstage period.

Methods

An integrative review approach to synthesize findings across studies was used. Through constant comparative analysis, all articles were read and coded, broken down into “data bits” or key phrases.

Results

Four major themes were inductively derived: 1) education and confidence-building, 2) communication for building relationships, 3) social work and related mental health support, and 4) availability of resources.

Conclusions

Despite advances in cardiac surgery and related interventions, a clear gap exists regarding care coordination factors and infant well-being, especially in rural communities.

中文翻译：

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阶段间期单心室心脏病婴儿的护理协调、农村和幸福的科学状况，综合评价

背景

确保居住在农村社区的单心室心脏病 (SVHD) 婴儿的阶段间管理质量很困难。通过父母出院教育、正式和非正式护理团队和家庭沟通、充分获得医疗保健以及知情的提供者交接，量身定制的护理协调对婴儿的福祉和生存至关重要。

客观的

讨论与阶段间期护理协调因素和婴儿健康相关的科学状况。

方法

使用综合审查方法来综合跨研究的结果。通过不断的比较分析，所有文章都被阅读和编码，分解成“数据位”或关键短语。

结果

归纳得出四个主要主题：1) 教育和建立信心，2) 建立关系的沟通，3) 社会工作和相关的心理健康支持，以及 4) 资源的可用性。

结论

尽管心脏手术和相关干预措施取得了进展，但在护理协调因素和婴儿福祉方面仍存在明显差距，尤其是在农村社区。