Background

Considering the potential impacts of family caregivers on heart failure management and the costs of healthcare, health professionals need to pay attention to the challenges faced by family caregivers.

Objective

This study longitudinally explored the caregiving experiences of family caregivers of persons with heart failure.

Methods

Serial interview scripts collected from 53 family caregivers were analyzed using a content analysis method.

Results

The following themes emerged: (1) accumulating knowledge and skills for caregiving; (2) losing a sense of control; (3) balancing an unstable life; (4) constructing illness memory; (5) centering the patient in daily life; (6) accepting the loss of a family member; (7) coping with grief by drawing on social support; (8) facing financial responsibility; and (9) rethinking hospice care.

Conclusion

Family caregivers experience concern about unpredictable caregiving years, disease's fluctuating symptoms and poor prognosis. More educational opportunities, financial counseling programs, and palliative care consultations should be provided.

中文翻译：

---

心力衰竭患者的纵向家庭护理经历：访谈的二次定性分析

背景

考虑到家庭照顾者对心力衰竭管理的潜在影响和医疗保健成本，卫生专业人员需要关注家庭照顾者面临的挑战。

客观的

本研究纵向探讨了心力衰竭患者家庭照顾者的照顾经历。

方法

使用内容分析方法对从 53 名家庭照顾者收集的连续采访脚本进行了分析。

结果

出现了以下主题：（1）积累护理知识和技能；(2)失去控制感；(3) 平衡不稳定的生活；(4)构建疾病记忆；(5)在日常生活中以患者为中心；（六）接受失去家庭成员的；（七）借助社会支持应对悲痛；（八）面临财务责任；(9) 重新思考临终关怀。

结论

家庭照顾者担心不可预测的照顾年限、疾病的波动症状和不良预后。应该提供更多的教育机会、财务咨询计划和姑息治疗咨询。