Purpose

Although researchers have explored parental perspectives on childhood speech and language disorders, this work has mostly been conducted in English-speaking countries. Little is known about parental experiences across countries. Participation in the COST Action IS1406 ‘Enhancing children’s oral language skills across Europe and beyond’ provided an opportunity to conduct cross-cultural qualitative interviews. The aims were to explore how parents construe inclusion and/or exclusion of their child and how parents involve themselves in order to facilitate inclusion.

Method

Parents from nine countries and with a child who had received services for speech-language disorder participated in semi-structured qualitative interviews. We used thematic analysis to analyze the data.

Results

Two overarching themes were identified: ‘Language disabilities led to social exclusion’ and ‘Promoting pathways to social inclusion’. Two subthemes were identified Interpersonal relationships are important and Deliberate proactiveness as stepping stones for social inclusion.

Conclusions

Across countries, parents report that their children’s hidden disability causes misunderstandings that can lead to social exclusion and that they are important advocates for their children. It is important that the voices and experiences of parents of children with developmental disabilities are understood and acknowledged. Parents’ recommendations about how to support social inclusion need to be addressed at all levels of society.

中文翻译：

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“所以，我叫他去找朋友！” 可能促进语言障碍儿童融入日常社交环境的障碍和保护因素：与父母的跨文化定性访谈

目的

尽管研究人员已经探索了父母对儿童言语和语言障碍的看法，但这项工作主要是在英语国家进行的。人们对各国父母的经历知之甚少。参与成本行动 IS1406“提高欧洲及其他地区儿童的口语技能”提供了进行跨文化定性访谈的机会。目的是探索父母如何理解包容和/或排斥他们的孩子，以及父母如何参与以促进包容。

方法

来自九个国家的父母和一名接受过语言障碍服务的孩子参加了半结构化的定性访谈。我们使用主题分析来分析数据。

结果

确定了两个总体主题：“语言障碍导致社会排斥”和“促进社会包容的途径”。确定了两个子主题人际关系很重要，而刻意主动作为社会包容的垫脚石。

结论

在各个国家/地区，父母都报告说，他们孩子的隐性残疾会导致误解，从而导致社会排斥，他们是孩子的重要倡导者。理解和承认发育障碍儿童父母的声音和经历很重要。父母关于如何支持社会包容的建议需要在社会各个层面得到解决。