当前位置: X-MOL 学术J. Gerontol. Ser. B › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Boundary Crossers: How Providers Facilitate Ethnic Minority Families’ Access to Dementia Services
The Journals of Gerontology: Series B ( IF 6.2 ) Pub Date : 2021-04-20 , DOI: 10.1093/geronb/gbab073
Bianca Brijnath 1, 2 , Andrew S Gilbert 1, 3 , Josefine Antoniades 1, 2 , Samantha Croy 1, 4 , Mike Kent 5 , Katie Ellis 5 , Colette Browning 6, 7 , Dianne Goeman 8, 9 , Jon Adams 10
Affiliation  

Objectives Providers who work closely with ethnic minority people with dementia and their families are pivotal in helping them access services. However, few studies have examined how these providers actually do this work. Using the concept of “boundary crossers,” this article investigates the strategies applied by these providers to facilitate access to dementia services for ethnic minority people with dementia and their families. Methods Between 2017 and 2020, in-depth video-recorded interviews were conducted with 27 health, aged care, and community service providers working with ethnic minority people living with dementia across Australia. Interviews were conducted in one of seven languages and/or in English, then translated and transcribed verbatim into English. The data were analyzed thematically. Results Family and community stigma associated with dementia and extra-familial care were significant barriers to families engaging with services. To overcome these barriers, participants worked at the boundaries of culture and dementia, community and systems, strategically using English and other vernaculars, clinical and cultural terminology, building trust and rapport, and assisting with service navigation to improve access. Concurrently, they were cognizant of familial boundaries and were careful to provide services that were culturally appropriate without supplanting the families’ role. Discussion In negotiating cultural, social, and professional boundaries, providers undertake multidimensional and complex work that involves education, advocacy, negotiation, navigation, creativity, and emotional engagement. This work is largely undervalued but offers a model of care that facilitates social and community development as well as service integration across health, aged care, and social services.

中文翻译:

越界者:提供者如何促进少数族裔家庭获得痴呆症服务

目标 与患有痴呆症的少数民族及其家人密切合作的提供者在帮助他们获得服务方面发挥着关键作用。然而,很少有研究检查这些提供者实际上是如何完成这项工作的。本文使用“跨界者”的概念,调查了这些提供者为促进少数民族痴呆症患者及其家人获得痴呆症服务而采取的策略。方法 在 2017 年至 2020 年期间,对 27 名与澳大利亚各地患有痴呆症的少数族裔人士合作的健康、老年护理和社区服务提供者进行了深入的视频采访。采访以七种语言中的一种和/或英语进行,然后逐字翻译并转录成英语。对数据进行了专题分析。结果 与痴呆症和家庭外护理相关的家庭和社区污名是家庭参与服务的重大障碍。为了克服这些障碍,参与者在文化和痴呆、社区和系统的边界工作,战略性地使用英语和其他方言、临床和文化术语,建立信任和融洽关系,并协助服务导航以改善访问。同时,他们认识到家庭界限,并在不取代家庭角色的情况下谨慎地提供文化上适当的服务。讨论 在协商文化、社会和专业界限时,提供者承担涉及教育、宣传、谈判、导航、创造力和情感参与的多维和复杂工作。
更新日期:2021-04-20
down
wechat
bug