Parkinson's disease (PD) is the second most common progressive neuro-degenerative disorder. Research in PD is gradually increasing in India due to increased clinical cases, which could double by 2030 worldwide. Although its prevalence is low in India as compared to other countries, the total burden is much higher due to the large population size. PD is progressively debilitating, with pronounced motor and nonmotor symptoms (NMSs) that severely affect the quality of life (QoL) of patients and their caregivers. The progressive nature of the disease lays great emphasis on doctors to focus on the patients' QoL. As a consequence, Health-related QoL (HRQoL) has gradually become one of the main indicators for assessing health-related outcome. There is a growing need to pay attention to the NMSs and a pressing need to look at the QoL of Indian patients with PD through a culture and value specific lens. Research into the holistic QoL assessment with emphasis on psychological domains may allow for the early evaluation and intervention of depressive and cognitive symptoms in PD. This could result into increased productivity, reduced morbidity, and healthcare cost, which would in turn result into better QoL of Indian PD patients.


中文翻译：

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通过改进心理领域的测量来提高印度帕金森病患者的生活质量：一个观点



帕金森病 (PD) 是第二常见的进行性神经退行性疾病。由于临床病例的增加，印度对帕金森病的研究正在逐渐增加，到 2030 年，全球帕金森病的研究可能会翻一番。尽管与其他国家相比，印度的患病率较低，但由于人口规模庞大，总负担要高得多。 PD 会逐渐使人衰弱，并伴有明显的运动和非运动症状 (NMS)，严重影响患者及其护理人员的生活质量 (QoL)。该疾病的进展性使得医生非常重视患者的生活质量。因此，健康相关生活质量（HRQoL）逐渐成为评估健康相关结局的主要指标之一。人们越来越需要关注 NMS，并且迫切需要通过文化和价值特定的视角来观察印度 PD 患者的生活质量。以心理领域为重点的整体生活质量评估研究可能有助于对帕金森病的抑郁和认知症状进行早期评估和干预。这可能会提高生产力、降低发病率和医疗成本，从而提高印度帕金森病患者的生活质量。