Abstract

Objectives

Engagement of pediatric patients in conversations about their healthcare can lead to better psychological and physical outcomes. We used a communication tool called “What Matters to Me” (WMTM) to provide insight into what seriously ill children want to tell their healthcare providers about what is important to them.

Research Approach

Content analysis of completed tools

Participants

21 pediatric patients hospitalized on a stem cell transplant unit.

Methodological Application

Direct content analysis.

Findings

Three themes were identified: importance of personal identity, preferences for communication, and preferences for care delivery.

Interpretations

Children and adolescents with serious medical illnesses are willing to share what matters to them with members of their care team. WMTM provides an opportunity for pediatric units to systematically offer this opportunity to pediatric patients.

Findings for Psychosocial Providers

Children and adolescents are able to identify and share what matters to them with their healthcare providers, providing an opportunity for engagement in medical care.

中文翻译：

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“什么对我很重要”：儿科干细胞移植患者希望他们的提供者知道什么

摘要

目标

儿科患者参与有关其医疗保健的对话可以带来更好的心理和身体结果。我们使用了一种名为“What Matters to Me”（WMTM）的交流工具来深入了解重病儿童想告诉他们的医疗保健提供者什么对他们来说很重要。

研究方法

已完成工具的内容分析

参与者

21 名儿科患者在干细胞移植单位住院。

方法论应用

直接内容分析。

发现

确定了三个主题：个人身份的重要性、沟通偏好和提供护理的偏好。

解释

患有严重疾病的儿童和青少年愿意与他们的护理团队成员分享对他们来说重要的事情。WMTM 为儿科单位系统地为儿科患者提供这个机会提供了机会。

心理社会提供者的发现

儿童和青少年能够识别并与他们的医疗保健提供者分享对他们来说重要的事情，从而提供参与医疗保健的机会。