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Feasibility of a Web-Based Psychoeducation Course and Experiences of Caregivers Living With a Person With Schizophrenia Spectrum Disorder: Mixed Methods Study
Journal of Medical Internet Research ( IF 5.8 ) Pub Date : 2021-04-23 , DOI: 10.2196/25480
Anna Laine 1 , Minna Anttila 1 , Heli Hirvonen 1 , Maritta Välimäki 1, 2
Affiliation  

Background: Schizophrenia is a severe mental illness that burdens both patients and caregivers. Objective: The aim of this study is to examine the feasibility of a web-based psychoeducation course targeted at caregivers of persons with schizophrenia spectrum disorders (SSDs) and to describe their experiences of living with a person with SSD based on the material caregivers produced during the web-based course. Methods: A convergent, parallel, mixed methods study design was used. First, caregivers’ engagement in the course was evaluated quantitatively. Second, the overview of the course feedback was evaluated using quantitative and qualitative methods. Third, the experiences of being a caregiver to a person with SSD were analyzed qualitatively with the thematic analysis of the writings caregivers produced during the web-based course. Results: A total of 30 caregivers participated in the study and a web-based psychoeducation course. Less than two-thirds (18/30, 60%) completed the course. Content was most often logged for the first module, Orientation (3465 log-ins), and the lowest number of log-ins was recorded for the Daily life module (1061 log-ins). Feedback on the course varied; over half (10/17, 59%) of the caregivers considered the content to be very good or good, about half (9/17, 53%) considered the website layout to be good, only 6% (1/17) felt that the usability of the website was poor, and no one felt that it was very poor. From the reported experiences of being a caregiver to a person with SSD, 3 themes were formed: the caregiver’s own well-being, relationship with the person with SSD, and experience of health care services. Conclusions: The web-based psychoeducation course for caregivers living with a person with SSD seems to be especially suitable for those who have little experience as a caregiver. In the future, more planning and the consideration of aspects related to the needs of specific target groups, course content, practical arrangements, and scheduling should be taken into account. In addition, although caregivers can improve their own well-being in different ways, they need regular support and cooperation from health care professionals. Trial Registration:

This is the abstract only. Read the full article on the JMIR site. JMIR is the leading open access journal for eHealth and healthcare in the Internet age.


中文翻译:


基于网络的心理教育课程的可行性以及与精神分裂症谱系障碍患者一起生活的护理人员的经验:混合方法研究



背景:精神分裂症是一种严重的精神疾病,给患者和护理人员带来负担。目的:本研究的目的是检验针对精神分裂症谱系障碍(SSD)患者的照顾者的基于网络的心理教育课程的可行性,并根据照顾者在精神分裂症谱系障碍(SSD)期间产生的材料来描述他们与 SSD 患者一起生活的经历。基于网络的课程。方法:采用收敛、并行、混合方法研究设计。首先,对护理人员对课程的参与程度进行定量评估。其次,使用定量和定性方法评估课程反馈的概况。第三,通过对网络课程期间护理人员撰写的文章进行主题分析,对 SSD 患者的护理经历进行定性分析。结果:共有 30 名护理人员参与了这项研究和基于网络的心理教育课程。不到三分之二(18/30,60%)完成了课程。最常记录的内容是第一个模块“迎新”(3465 次登录),而记录的登录次数最少的是“日常生活”模块(1061 次登录)。对课程的反馈各不相同;超过一半(10/17,59%)的护理人员认为内容非常好或很好,大约一半(9/17,53%)认为网站布局很好,只有6%(1/17)认为网站的可用性很差,没有人觉得它很差。根据报告的 SSD 患者护理人员的经历,形成了 3 个主题:护理人员自身的福祉、与 SSD 患者的关系以及医疗保健服务的体验。 结论:针对与 SSD 患者一起生活的护理人员的基于网络的心理教育课程似乎特别适合那些缺乏护理经验的人。今后应更多地规划和考虑具体目标群体的需求、课程内容、实践安排、时间安排等方面。此外,尽管护理人员可以通过不同的方式改善自己的福祉,但他们需要医疗保健专业人员的定期支持与合作。试用注册:


这只是摘要。请阅读 JMIR 网站上的完整文章。 JMIR 是互联网时代电子健康和医疗保健领域领先的开放获取期刊。
更新日期:2021-04-23
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