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Re-imagining care transitions for people with dementia and complex support needs in residential aged care: using co-designed sensory objects and a focused ethnography to recognise micro transitions
Ageing & Society ( IF 2.3 ) Pub Date : 2021-04-14 , DOI: 10.1017/s0144686x2100043x
Louisa Smith , Lyn Phillipson , Pat Knight

The concept of transition is often used in health and lifecourse research to understand a significant movement from one state or place to another. While people with dementia experience more major transitions than their peers, they are often excluded from transitional care research. This study set out to develop meaningful transitional supports for people with dementia and complex support needs who were undertaking a significant planned geographical transition from their current residential aged care facility to a new purpose-built facility. Using the language of complex support needs acknowledges that participants in this study have a breadth and depth of need, including cognitive, physical, psycho-social and communication impairments and social and cultural disadvantage associated with ageing, institutionalisation and social isolation. To support their move, Participatory Action Research was used to support the co-creation of transitional objects (personalised scarves and blankets) with 15 people with dementia, their families and care staff. Whilst these objects were useful in supporting transition, it was not in the way we imagined. Whilst our initial focus had been on supporting a significant geographical transition, rather it was four types of micro transitions in which the transitional objects were used: small physical transitions (from one place to another); social transitions (entering or exiting personal interactions); activity transitions (moving between activities); and time travel (moving between different times). Reimagining transitions from the perspective of people with dementia and complex support needs involves the recognition of the need for supports for micro as well as macro transitions. Personalised objects to support these everyday micro transitions have the potential to make the lives of people with dementia and complex support needs more manageable, meaningful and comprehensible. Reimagining transitions in dementia in this way helps us reimagine dementia itself, as a constantly fluid, dynamic and responsive series of moments which also has implications for the re-imagination of dementia care.



中文翻译:

为痴呆症患者和住院老年护理中复杂的支持需求的患者重新想象护理过渡:使用共同设计的感官对象和有针对性的人种志技术来识别微观过渡

过渡概念通常用于健康和生命历程研究中,以了解从一个州或一个地方到另一个州或地方的重大运动。尽管患有痴呆症的人比同龄人经历了更多的重大转变,但他们经常被排除在过渡期护理研究之外。这项研究旨在为患有痴呆症和复杂支持需求的人提供有意义的过渡支持,这些人正在从现有的住宅老年护理设施到新的专用设施进行重大计划的地理过渡。使用复杂支持需求的语言承认,该研究的参与者具有广度和深度的需求,包括认知,身体,心理-社会和沟通障碍以及与老龄化,制度化和社会孤立相关的社会和文化劣势。为了支持他们的行动,参与式行动研究被用来支持与15位痴呆症患者,其家人和护理人员共同创建过渡物品(个性化的围巾和毯子)。这些对象在支持过渡方面很有用,但并非我们想象的那样。尽管我们最初的重点是支持重大的地理过渡,但使用过渡对象的是四种类型的微观过渡:小型物理过渡(从一个地方到另一个地方);社会转变(进入或退出个人互动);活动过渡(活动之间移动);和时间旅行(在不同时间之间移动)。从痴呆症患者和复杂的支持需求的角度重新想象过渡,需要认识到需要微观和宏观过渡的支持。支持这些日常微观过渡的个性化对象有可能使痴呆症患者的生活和复杂的支持需求变得更易于管理,更有意义和更易于理解。通过这种方式重新想象痴呆症的转变,可以帮助我们重新构想痴呆症本身,因为它是一系列不断变化,动态且反应迅速的时刻,也对痴呆症护理的重新想象具有影响。支持这些日常微观过渡的个性化对象有可能使痴呆症患者的生活和复杂的支持需求更加可管理,有意义和可理解。通过这种方式重新想象痴呆症的转变,可以帮助我们重新构想痴呆症本身,因为它是一系列不断变化,动态且反应迅速的时刻,也对痴呆症护理的重新想象具有影响。支持这些日常微观过渡的个性化对象有可能使痴呆症患者的生活和复杂的支持需求变得更易于管理,更有意义和更易于理解。通过这种方式重新想象痴呆症的转变,可以帮助我们重新构想痴呆症本身,因为它是一系列不断变化,动态且反应迅速的时刻,也对痴呆症护理的重新想象具有影响。

更新日期:2021-04-14
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