Aim and Objective: This study aimed to explore how caregivers of persons with Down syndrome (DS) believe caring had an impact on their own lives. A secondary objective was to understand their experience of seeking educational, social, and health care services for the persons with DS.

Methods: This qualitative exploratory study was conducted with 21 caregivers of persons with DS in Kuwait.

Results: Caregivers struggled to accept the diagnosis initially that led them to search for answers to many of their concerns about raising a person with DS. For the caregivers, who mostly comprised of mothers, dealing with health conditions that persons with DS suffered from was initially difficult. Caring for these individuals led to heavy impact upon their caregivers’ own lives who took extraordinary efforts to cope with the burden. Seeking quality education for the persons with DS and participation in social activities was also challenging, and the caregivers believed that better services, facilities, and benefits for the families of persons with DS may help them better cope with the socioeconomic and psychological burden.

Conclusions: Improving the availability of specialized services, the delivery of guidance and counselling, and social integration may help overcome challenges of raising a person with Down Syndrome.

目的和目的：本研究旨在探讨唐氏综合症 (DS) 患者的护理人员如何认为护理对他们自己的生活产生影响。第二个目标是了解他们为 DS 患者寻求教育、社会和医疗保健服务的经历。

方法：这项定性探索性研究是针对科威特 21 名 DS 患者的护理人员进行的。

结果：护理人员最初很难接受这一诊断，这导致他们寻找答案来解决抚养 DS 患者的许多担忧。对于主要由母亲组成的护理人员来说，处理 DS 患者所遭受的健康状况最初很困难。照顾这些人对他们的照顾者自己的生活造成了严重影响，他们付出了巨大的努力来应对这一负担。为DS患者寻求优质教育和参与社会活动也具有挑战性，护理人员认为，为DS患者家庭提供更好的服务、设施和福利可能有助于他们更好地应对社会经济和心理负担。

结论：改善专业服务的可用性、提供指导和咨询以及社会融合可能有助于克服抚养唐氏综合症患者的挑战。