当前位置: X-MOL 学术Journal of Aging Studies › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Keeping care fully alive – An ethnography of Moving-with carers and persons living with dementia
Journal of Aging Studies ( IF 1.8 ) Pub Date : 2021-04-08 , DOI: 10.1016/j.jaging.2021.100927
Keven Lee 1 , Melissa Park 2
Affiliation  

Metaphors of persons living with dementia as living dead or zombies create images of soulless bodies, consuming the lives of those around them. Such metaphors also accentuate the public fear of dementia as one of the most threatening conditions that can befall persons or their loved ones. Drawing from an ethnography on the experience of carers and persons living with dementia, the sub-study described in this article focused on specific events within Moving-with—an eight sessions movement group designed to cultivate new experiences of self with others. At the end of the last session, a carer referred to her experience of Moving-with as “some good times.” Her statement raised questions about what constituted those “good times” for that particular carer and how they came to be. Using a narrative-phenomenological approach that foregrounds the particularities of human interactions, we traced the course of a “good time,” from its creation by all the participants in a Moving-with session to how it entered into the couple's everyday life outside the sessions. A microanalysis of those significant experiences illuminates how the improvisational actions of those involved made space for others to respond in ways not solely defined by their caregiving relationship. Dewey's philosophy on aesthetics further highlights the fully alive nature of such moments and underscores how the embodied and ethical nature of care arises in the tension between past and present. Care as an experience is, thus, never fixed. Attention to those moments contributes to the ways in which we can (re)define and enact care. In other words, tracing the creation of fully alive moments and their portrayal can contribute to keeping care, itself, fully alive.



中文翻译:

保持照料充分活力——与照料者和痴呆症患者一起搬家的民族志

将痴呆症患者视为活死人或僵尸的比喻创造了没有灵魂的身体的形象,吞噬了周围人的生命。此类比喻还强调了公众对痴呆症的恐惧,认为痴呆症是可能降临到个人或其亲人身上的最具威胁性的疾病之一。本文中描述的子研究借鉴了关于照顾者和痴呆症患者经历的民族志,重点关注移动中的特定事件- 一个八次会议的运动小组,旨在培养与他人的新自我体验。在上次会议结束时,一位护理人员提到了她的搬家经历作为“一些美好时光”。她的声明引发了关于该特定护理人员的那些“美好时光”的构成以及它们是如何形成的问题。使用突出人类互动特殊性的叙事现象学方法,我们追溯了“美好时光”的过程,从所有参与者在移动会话中的创造到它如何进入会话之外的夫妻日常生活. 对这些重要经历的微观分析阐明了参与者的即兴行动如何为其他人以不仅仅由他们的照顾关系定义的方式做出回应。杜威的美学哲学进一步突出了充满活力的这些时刻的性质,并强调了在过去和现在之间的紧张关系中,护理的具体化和伦理性质是如何产生的。因此,作为一种体验的关怀永远不会固定。关注这些时刻有助于我们(重新)定义和实施护理的方式。换句话说,跟踪的创建完全活着的时刻,他们的写照有助于保持照顾本身的,完全活着

更新日期:2021-04-09
down
wechat
bug