ABSTRACT

This study was planned to study caregiver’s perception of barriers to implementation of the Rights of Persons with Disabilities (RPWD) Act, 2016 in India. An online cross-sectional survey was carried out among parents of children with disabilities. A prevalidated structured and semi-structured questionnaire was used. Results of structured items are summarized as mean (SD), frequencies and percentages. For open-ended questions, responses were analyzed by manual content analysis; results were presented in the form of a framework. From 316 responses, 44.8% of respondents availed disability certificate however utilization was largely limited to travel and educational settings. 82.2% of respondents were not aware of any of the national health schemes. Only 6.2% of children could engage in play activity at the playground. Accessibility, health issues and social stigma were the main barriers to recreation for children with disabilities. While 25.8% of children did not attend school at all, 58.1% of children attending normal school were facing difficulties due to lack of appropriate school infrastructure, transportation issues, and untrained teachers. Responses to open-ended questions were predominantly related to needs of homegrown research, better infrastructure, and trained teachers in schools, life security of child and development of national registry for better health information. The study highlights the importance of implementation of concrete strategies at every level of policy decisions to create more awareness regarding RPWD act in India.

摘要

本研究计划研究护理人员对印度实施 2016 年《残疾人权利法》(RPWD) 的障碍的看法。在残疾儿童的父母中进行了在线横断面调查。使用预先验证的结构化和半结构化问卷。结构化项目的结果总结为平均值 (SD)、频率和百分比。对于开放式问题，通过人工内容分析对回答进行分析；结果以框架的形式呈现。在 316 份回复中，44.8% 的受访者获得了残疾证明，但使用主要限于旅行和教育环境。82.2% 的受访者不了解任何国家卫生计划。只有 6.2% 的儿童可以在操场上进行游戏活动。可访问性，健康问题和社会污名是残疾儿童娱乐的主要障碍。虽然 25.8% 的儿童根本没有上学，但由于缺乏适当的学校基础设施、交通问题和未经培训的教师，有 58.1% 的就读师范儿童面临困难。对开放式问题的回答主要与本土研究的需求、更好的基础设施、学校训练有素的教师、儿童的生命安全以及为更好的健康信息建立国家登记册有关。该研究强调了在各级政策决策中实施具体战略的重要性，以提高对印度 RPWD 法案的认识。8% 的儿童根本没有上学，58.1% 的上师范儿童由于缺乏适当的学校基础设施、交通问题和未经培训的教师而面临困难。对开放式问题的回答主要与本土研究的需求、更好的基础设施、学校训练有素的教师、儿童的生命安全以及为更好的健康信息建立国家登记册有关。该研究强调了在各级政策决策中实施具体战略的重要性，以提高对印度 RPWD 法案的认识。8% 的儿童根本没有上学，58.1% 的上师范儿童由于缺乏适当的学校基础设施、交通问题和未经培训的教师而面临困难。对开放式问题的回答主要与本土研究的需求、更好的基础设施、学校训练有素的教师、儿童的生命安全以及为更好的健康信息建立国家登记册有关。该研究强调了在各级政策决策中实施具体战略的重要性，以提高对印度 RPWD 法案的认识。对开放式问题的回答主要与本土研究的需求、更好的基础设施、学校训练有素的教师、儿童的生命安全以及为更好的健康信息建立国家登记册有关。该研究强调了在各级政策决策中实施具体战略的重要性，以提高对印度 RPWD 法案的认识。对开放式问题的回答主要与本土研究的需求、更好的基础设施、学校训练有素的教师、儿童的生命安全以及为更好的健康信息建立国家登记册有关。该研究强调了在各级政策决策中实施具体战略的重要性，以提高对印度 RPWD 法案的认识。