The COVID-19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other contained patients could only use self-care strategies, especially in countries that have set up a long and strict containment such as France. The study aimed to compare coping strategies deployed by patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS; a poorly recognised syndrome) to those with better known and referenced chronic conditions. An online flash survey was conducted during the containment period in partnership with French Patients Organizations including ME/CFS national association. Therefore, ‘Brief COPE’ version of Lazarus and Folkman's Ways of Coping Check List has been adapted to the specificity of the containment. The survey was e-distributed in France from 15 April to 11 May 2020. Differences of coping strategies were analyzed using Wilcoxon–Mann–Withney test. Amongst 637 responses, 192 were complete, presenting a wide variety of diseases, including 93 ME/CFS. The latter have significantly different coping strategies than recognised diagnosed diseases patients: similar uses of emotion focused coping but less uses of seek social support and problem-focused copings. In conclusion, coping strategies are different for those who deal with the daily experience of ME/CFS, highly disabling chronic condition with diagnostic ambiguity, low degree of medical and social recognition and without treatment. Better understanding of those strategies is needed to provide the means for health promotion researchers, managers and clinicians, to accompany those patients.

中文翻译：

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在 COVID-19 遏制期间的法国快速调查中确定的慢性疲劳综合症应对策略的细节

COVID-19 大流行使卫生系统将重点放在支持受该病毒影响的患者上。与此同时，在社区中，许多其他被收容的患者只能采取自我护理策略，尤其是在法国等建立了长期严格收容措施的国家。该研究旨在比较肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS；一种认识不足的综合征）患者与那些众所周知和参考的慢性病患者所采用的应对策略。在遏制期间与包括 ME/CFS 国家协会在内的法国患者组织合作进行了在线快速调查。因此，“Brief COPE”版本的 Lazarus 和 Folkman 的应对方式检查表已根据收容措施的特殊性进行了调整。该调查于 2020 年 4 月 15 日至 5 月 11 日在法国通过电子方式分发。使用 Wilcoxon-Mann-Withney 检验分析了应对策略的差异。在 637 份回复中，192 份是完整的，涉及多种疾病，包括 93 份 ME/CFS。后者的应对策略与公认的诊断疾病患者有显着不同：情绪导向应对的类似用途，但寻求社会支持和问题导向应对的用途较少。综上所述，对于那些处理ME/CFS日常经历、高度致残且诊断不明确、医学和社会认可度低且未经治疗的慢性病患者，应对策略是不同的。需要更好地了解这些策略，以便为健康促进研究人员、管理人员和临床医生提供陪伴这些患者的方法。