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Genetic testing to restore the human right to identity in post-dictatorship Argentina: Ethical, legal, and social issues
American Journal of Medical Genetics Seminars in Medical Genetics, Part C ( IF 2.8 ) Pub Date : 2021-04-07 , DOI: 10.1002/ajmg.c.31905
Victor B Penchaszadeh 1
Affiliation  

The last military dictatorship in Argentina (1976–1983), committed egregious violations of human rights, including torture assassinations and disappearance of 30,000 political dissidents as well as friends and relatives. This included hundreds of pregnant women who were kept in clandestine detention centers and killed after delivering their babies in abject conditions. The succeeding democratic governments applied forensic genetics at the Banco Nacional de Datos Genéticos to identify the estimated 500 children stolen at birth and being reared by military families with suppression of their identity. The first genetic identification was in 1984 of a 6 years old, while the latest was in 2019 of a 44 years old, completing so far 130 identifications along 35 years of post-dictatorship. The ethical, legal, and psycho-social complexities of restoration of genetic identity after years of appropriation and suppression of identity in the Argentine context, is discussed at length. Evidence indicates that after initial psychological distress, most individuals that had their true genetic identity restored experienced relief by learning the truth and reuniting with their biological families. Many “recovered grandchildren” are socially and politically involved in progressive causes and express pride for the social activism of their disappeared parents. The role played by genetics in support of the right to identity in Argentina has set an example of social responsibility of science in defense of human rights.

中文翻译:

阿根廷独裁后恢复人权身份权的基因检测:伦理、法律和社会问题

阿根廷的最后一次军事独裁统治(1976-1983 年)严重侵犯人权,包括酷刑暗杀和 30,000 名持不同政见者以及亲友失踪。其中包括数百名孕妇,她们被关押在秘密拘留中心,在恶劣的条件下分娩后被杀害。随后的民主政府在国家拿督遗传银行应用法医遗传学,以确定大约 500 名在出生时被盗并由军人家庭抚养并隐瞒身份的儿童。第一次基因鉴定是在 1984 年对一个 6 岁的孩子进行的,而最近一次是在 2019 年对一个 44 岁的孩子进行的,在独裁后的 35 年里,迄今为止完成了 130 次鉴定。道德、法律、在阿根廷的背景下,经过多年的认同和压制后,基因认同恢复的心理社会复杂性,进行了详细的讨论。有证据表明,在最初的心理困扰之后,大多数恢复了真实基因身份的人通过了解真相并与亲生家人团聚而感到解脱。许多“康复的孙子”在社会和政治上都参与了进步事业,并对失踪父母的社会活动表示自豪。在阿根廷,遗传学在支持身份权方面发挥的作用为科学在捍卫人权方面的社会责任树立了榜样。有证据表明,在最初的心理困扰之后,大多数恢复了真实基因身份的人通过了解真相并与亲生家人团聚而感到解脱。许多“康复的孙子”在社会和政治上都参与了进步事业,并对失踪父母的社会活动表示自豪。在阿根廷,遗传学在支持身份权方面发挥的作用为科学在捍卫人权方面的社会责任树立了榜样。有证据表明,在最初的心理困扰之后,大多数恢复了真实基因身份的人通过了解真相并与亲生家人团聚而感到解脱。许多“康复的孙子”在社会和政治上都参与了进步事业,并对失踪父母的社会活动表示自豪。在阿根廷,遗传学在支持身份权方面发挥的作用为科学在捍卫人权方面的社会责任树立了榜样。许多“康复的孙子”在社会和政治上都参与了进步事业,并对失踪父母的社会活动表示自豪。在阿根廷,遗传学在支持身份权方面发挥的作用为科学在捍卫人权方面的社会责任树立了榜样。许多“康复的孙子”在社会和政治上都参与了进步事业,并对失踪父母的社会活动表示自豪。在阿根廷,遗传学在支持身份权方面发挥的作用为科学在捍卫人权方面的社会责任树立了榜样。
更新日期:2021-04-07
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