In this paper, we present an exploration of arts-based knowledge translation through photography highlighting the lived experience of Osteogenesis Imperfecta (OI), a genetic disorder. It forms part of our larger photovoice research project that involved six female photographers with physical impairment. This group of women shared their personal experiences through photographic stories to challenge pervasive, limiting negative attitudes and assumptions that surround disability. In this paper, we focus on the data, analysis and discussion to one type of impairment, OI, and two photographers’ work to present their:

• embodied expertise and knowledge of living with OI;

• self-portraits as contemporary disability identity, contributing to intersectionality in feminist and disability arenas;

• authentic voice as co-authors of this paper using Drew and Guillemin’s interpretive engagement framework;

• original arts-based research insights currently absent in the meagre qualitative research on OI.

By presenting, analysing and interpreting self-portraits of OI as valuable arts-based knowledge, we hope to provide readers with a better understanding of disability and femininity as a pathway to greater inclusion.

在本文中，我们通过摄影展示了基于艺术的知识翻译的探索，突出了成骨不全症 (OI) 的生活经验，这是一种遗传性疾病。它是我们更大的摄影语音研究项目的一部分，该项目涉及六名身体受损的女性摄影师。这组女性通过摄影故事分享了她们的个人经历，以挑战普遍存在的、限制性的消极态度和围绕残疾的假设。在本文中，我们专注于对一种损伤类型 OI 和两位摄影师的工作的数据、分析和讨论，以展示他们的：

• 体现与 OI 一起生活的专业知识和知识；

• 自画像作为当代残疾身份，有助于女权主义和残疾领域的交叉性；

• 使用 Drew 和 Guillemin 的解释性参与框架作为本文共同作者的真实声音；

• 目前在关于 OI 的微薄定性研究中缺乏基于艺术的原创研究见解。

通过展示、分析和解释 OI 的自画像作为有价值的基于艺术的知识，我们希望让读者更好地理解残疾和女性气质，作为实现更大包容性的途径。