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Attitude toward personal genomics: A nation-wide survey of public and professionals in Pakistan
Annals of Human Genetics ( IF 1.9 ) Pub Date : 2021-03-30 , DOI: 10.1111/ahg.12419
Muhammad Ilyas 1, 2, 3 , Saima Malik 2 , Mukhtar Alam 4 , Aamir Mahmood 2 , Muhammad Irfan 1 , Muttahid Shah 5 , Atiqur Rahman 1 , Habib Ahmad 1, 3
Affiliation  

With the emergence of modern genetic testing and profiling techniques, it has become imperative to assess the general public awareness and attitudes toward such developments. The public's perspective and possible responses are necessary for planning commercial, legal, medical, or healthcare initiatives. The purpose of this study was to assess the perception of the general public and professionals about the personal genome testing and genetic profiling. A questionnaire-based survey was conducted to investigate the attitudes of 2954 adults (56.4% male and 43.6% female) from more than 120 different educational, research, and professional organizations of Pakistan. The aim of the study was to assess interest in genomic testing. The findings of this survey will feed into the larger Genome Projects in Pakistan and will be helpful for the national bioethical committee, healthcare agencies, diagnostic companies, and other institutions for making policy decisions.

中文翻译:

对个人基因组学的态度:对巴基斯坦公众和专业人士的全国调查

随着现代基因检测和分析技术的出现,评估公众对此类发展的认识和态度变得势在必行。公众的观点和可能的反应对于规划商业、法律、医疗或保健计划是必要的。本研究的目的是评估公众和专业人士对个人基因组测试和基因分析的看法。一项基于问卷的调查旨在调查来自巴基斯坦 120 多个不同教育、研究和专业组织的 2954 名成年人(56.4% 男性和 43.6% 女性)的态度。该研究的目的是评估对基因组测试的兴趣。
更新日期:2021-03-30
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