ABSTRACT

Background

Previous studies explored information needs for carers of persons with aphasia; however, there is minimal research on information needs for carers of people with right hemisphere disorder (RHD). Carers have an important role in rehabilitation and long-term quality of life of a person with RHD. This study explores the information needs for carers throughout different periods of rehabilitation following a family member’s right hemisphere stroke.

Methods/Procedures

Four participants completed online surveys and a semi-structured phone interview. The interviews were transribed and analysed for emerging themes.

Results

Analysis revealed four themes in the onset phase including barriers to information, right versus left brain function, recovery timeline and recommendations, and information about symptoms. Three themes emerged in the rehabilitation phase including detailed impairment information, general and specific treatment information, and specificity of timeline and recommendations. The chronic phase contained five themes consisting of information on supports for carers and patients, impairment specific information, treatment and treatment options, compensatory strategies and home practice, and hope

Conclusions

Results suggest the importance of considering the type of information, how this information varies based on RHD, and at what point carers want to receive this information may improve the delivery of information from medical professionals to carers through the phases of recovery.

中文翻译：

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家庭成员右脑卒中后护理人员的信息需求

摘要

背景

以前的研究探讨了失语症患者的照顾者的信息需求；然而，关于右半球障碍 (RHD) 患者护理人员的信息需求的研究很少。照顾者在 RHD 患者的康复和长期生活质量方面发挥着重要作用。本研究探讨了家庭成员右半球卒中后不同康复期护理人员的信息需求。

方法/程序

四名参与者完成了在线调查和半结构化电话采访。这些采访被转录并分析了新出现的主题。

结果

分析揭示了发病阶段的四个主题，包括信息障碍、左右脑功能、恢复时间表和建议，以及有关症状的信息。康复阶段出现了三个主题，包括详细的损伤信息、一般和特定的治疗信息以及时间表和建议的特异性。慢性期包含五个主题，包括对照顾者和患者的支持信息、损伤特定信息、治疗和治疗方案、补偿策略和家庭实践以及希望

结论

结果表明考虑信息类型的重要性，这些信息如何根据 RHD 变化，以及护理人员希望在什么时候接收这些信息，这可能会改善医疗专业人员在康复阶段向护理人员提供的信息。