Objective Prolonged home isolation may lead to long-term negative consequences for both children and caregivers’ psychological wellbeing, especially in families with children with neurodevelopmental disorders. Therefore, a scoping review was conducted to identify challenges faced by caregivers of children with neurodevelopmental disorders during the coronavirus disease 2019 (COVID-19) pandemic and to consolidate parenting interventions and guidelines. Methods A systematic search was conducted on Embase, PsycInfo, PubMed, Scopus, and LitCovid. All article types published between December 2019 and November 2020 which reported on intervention guidelines and experiences of families with children with neurodevelopmental disorders during the COVID-19 pandemic were included. Qualitative themes, quantitative data, and article summaries were charted, and a thematic analysis was conducted. Results Twenty-nine articles were included in the review. Three themes were generated: (a) behavioral issues and health concerns, (b) disruptions of lifelines and daily routines, and (c) existing programs, models, and guidelines to support families. Additionally, a list of caregiver strategies such as scheduling regular online consultations, maintaining online therapy, educating a child on COVID-19, and preventive behaviors, creating a structured daily schedule and reinforcement system, and selecting child-appropriate activities was consolidated. Conclusion This review revealed a lack of evidence-based studies and articles on children with other neurodevelopmental disorders apart from autism and attention-deficit hyperactivity disorder. It also places emphasis on the importance of telehealth services as major lifelines to parents during this pandemic and urges healthcare organizations to provide funding to increase telehealth services to afflicted families.

中文翻译：

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COVID-19 期间有神经发育障碍儿童的家庭：范围界定审查


目的 长期居家隔离可能会对儿童和照顾者的心理健康造成长期负面影响，特别是对于有神经发育障碍儿童的家庭。因此，进行了范围界定审查，以确定 2019 年冠状病毒病 (COVID-19) 大流行期间神经发育障碍儿童的照顾者面临的挑战，并巩固育儿干预措施和指南。方法 在 Embase、PsycInfo、PubMed、Scopus 和 LitCovid 上进行系统检索。 2019 年 12 月至 2020 年 11 月期间发表的所有文章类型均包含在内，这些文章报告了 COVID-19 大流行期间有神经发育障碍儿童的家庭的干预指南和经验。绘制了定性主题、定量数据和文章摘要图表，并进行了主题分析。结果 纳入综述29篇文章。产生了三个主题：(a) 行为问题和健康问题，(b) 生命线和日常生活中断，以及 (c) 支持家庭的现有计划、模型和指南。此外，还整合了一系列看护者策略，例如安排定期在线咨询、维持在线治疗、对儿童进行有关 COVID-19 的教育和预防行为、创建结构化的每日时间表和强化系统以及选择适合儿童的活动。结论 该综述显示，除了自闭症和注意力缺陷多动障碍之外，缺乏针对患有其他神经发育障碍的儿童的循证研究和文章。 它还强调了远程医疗服务作为此次大流行期间父母主要生命线的重要性，并敦促医疗机构提供资金，以增加对受影响家庭的远程医疗服务。