Abstract

Precision medicine can revolutionize health care by tailoring treatments to individual patient needs. Advancing precision medicine requires evidence development through research that combines needed data, including clinical data, at an unprecedented scale. Widespread adoption of health information technology (IT) has made digital clinical data broadly available. These data and information systems must evolve to support precision medicine research and delivery. Specifically, relevant health IT data, infrastructure, clinical integration, and policy needs must be addressed. This article outlines those needs and describes work the Office of the National Coordinator for Health Information Technology is leading to improve health IT through pilot projects and standards and policy development. The Office of the National Coordinator for Health Information Technology will build on these efforts and continue to coordinate with other key stakeholders to achieve the vision of precision medicine. Advancement of precision medicine will require ongoing, collaborative health IT policy and technical initiatives that advance discovery and transform healthcare delivery.

中文翻译：

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迎接挑战：健康信息技术在实现精准医疗中的重要作用

摘要

精准医学可以根据患者的个体需求定制治疗方案，从而彻底改变医疗保健领域。推进精准医学需要通过以前所未有的规模结合所需数据（包括临床数据）的研究来开发证据。健康信息技术 (IT) 的广泛采用使得数字临床数据得以广泛使用。这些数据和信息系统必须不断发展以支持精准医学研究和交付。具体来说，必须解决相关的卫生 IT 数据、基础设施、临床整合和政策需求。本文概述了这些需求，并描述了国家卫生信息技术协调员办公室正在通过试点项目、标准和政策制定来改善卫生信息技术。国家卫生信息技术协调员办公室将在这些努力的基础上继续与其他主要利益相关者协调，以实现精准医疗的愿景。精准医疗的进步需要持续、协作的卫生 IT 政策和技术举措，以推进发现并改变医疗保健服务。