Abstract

This manuscript illuminates the nuanced ways in which the COVID-19 pandemic has impacted the pediatric palliative care social work role and clinical care in caring for children with life-limiting illnesses and their families throughout the country. The authors discuss memorable moments, logistical impacts, telehealth usage, decision-making experiences, end of life care, bereavement practices, specialized interventions, and self-care. The paper concludes with lessons learned and practical recommendations for the future.

中文翻译：

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长长的阴影：在 COVID-19 期间全球流行病儿科姑息治疗社会工作中的附带影响和寻找复原力

摘要

这份手稿阐明了 COVID-19 大流行对儿科姑息治疗社会工作角色和临床护理在全国范围内照顾患有限制生命的疾病的儿童及其家人的影响的细微差别。作者讨论了难忘的时刻、后勤影响、远程医疗使用、决策经验、临终关怀、丧亲之痛、专业干预和自我保健。本文最后总结了经验教训和对未来的实用建议。