Purpose

This study aims to understand how healthcare social media offer nonmedical psycho-social support for pediatric oncology patients and their care community and how social media can be exploited for healthcare knowledge management.

Design/methodology/approach

Social media capabilities were identified and categorized based on psycho-social support services for pediatric oncology patients, caregivers and their community of care. Data were collected from 187 service sites representing more than 100 organizations. These broadly defined capabilities in trusted care organizations were analyzed to understand use of social media in providing psycho-social support.

Findings

Analysis revealed resource guides, stories and in-person support at clinics as the most prevalent forms of technology-guided psycho-social support. Privacy, security and information integrity rose as technical challenges for interactive social media platforms. Medical community trust is inconsistent, leading to immature adoption of critical psycho-social support as a knowledge management source. Findings further indicate the not-for-profit support sector provides robust social media capabilities compared to the healthcare sector.

Research limitations/implications

Future research may extend to maturing healthcare and not-for-profit sector services and to private sector products such as mobile applications and other technologies.

Practical implications

Survivor and caregiver quality of life depend on psycho-social support communities and services delivered via social media.

Social implications

Child protection social implications require significant attention due to sensitivity of security, privacy concerns and longevity of digital footprints for pediatric patients.

Originality/value

Research demonstrates opportunity for medical provider, healthcare organization, not-for-profit sector, patient and caregiver cooperation using social media. Data indicate healthcare technology systems leveraging social media can extend knowledge management capability beyond organization boundaries.

中文翻译：

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利用社交媒体实现知识管理医疗保健能力

目的

本研究旨在了解医疗社交媒体如何为儿科肿瘤患者及其护理社区提供非医学心理社会支持，以及如何利用社交媒体进行医疗知识管理。

设计/方法/方法

根据为儿科肿瘤患者、护理人员及其护理社区提供的心理社会支持服务，确定并分类了社交媒体功能。数据来自代表 100 多个组织的 187 个服务站点。对受信任的护理组织中这些广泛定义的功能进行了分析，以了解社交媒体在提供心理社会支持方面的用途。

发现

分析显示，资源指南、故事和诊所的面对面支持是技术引导的心理社会支持的最流行形式。隐私、安全和信息完整性随着交互式社交媒体平台的技术挑战而上升。医学界信任不一致，导致不成熟地采用重要的社会心理支持作为知识管理来源。调查结果进一步表明，与医疗保健部门相比，非营利支持部门提供了强大的社交媒体功能。

研究限制/影响

未来的研究可能会扩展到成熟的医疗保健和非营利部门服务以及私营部门产品，例如移动应用程序和其他技术。

实际影响

幸存者和照顾者的生活质量取决于社会心理支持社区和通过社交媒体提供的服务。

社会影响

由于儿童患者的安全敏感性、隐私问题和数字足迹的寿命，儿童保护的社会影响需要得到极大的关注。

原创性/价值

研究表明医疗提供者、医疗保健组织、非营利部门、患者和护理人员使用社交媒体合作的机会。数据表明，利用社交媒体的医疗保健技术系统可以将知识管理能力扩展到组织边界之外。