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Social welfare needs of bereaved Australian carers: Implications of insights from palliative care and welfare workers
Health and Social Care in the Community ( IF 2.0 ) Pub Date : 2021-03-11 , DOI: 10.1111/hsc.13339
Kristin Bindley 1, 2 , Joanne Lewis 1 , Joanne Travaglia 1 , Michelle DiGiacomo 1
Affiliation  

An individual and psychological emphasis has influenced practice and research on bereavement following informal care provision in the context of life‐limiting illness. Consideration of the potential for bereavement to be shaped by intersecting social and structural inequities is needed; and should include an understanding of interactions with government institutions and social policy. This qualitative study employed interpretive description to explore the way in which palliative care workers and welfare sector workers perceive and approach experiences and needs of bereaved carers receiving government income support or housing assistance in Western Sydney, an area associated with recognised socioeconomic disadvantage. A total of 21 palliative care workers within a public health service and welfare workers from two government social welfare services participated in in‐depth interviews. Data were analysed using framework analysis. Participants highlighted social welfare policy and related interactions that may impact bereavement, potentially related to financial, housing and employment precariousness. Personal, interpersonal and structural factors perceived to shape the navigation of welfare needs were explored, alongside needed professional and structural changes envisioned by workers. With limited forms of capital, vulnerably positioned carers may encounter difficulties that heighten their precariousness in bereavement. Transactional organisational cultures alongside health and welfare agencies that function in a siloed manner appear to contribute to structural burden for carers, following death due to life‐limiting illness. Palliative care and welfare workers also associated elements of their work with bereaved carers with their own experiences of helplessness, frustration and distress. Findings point to a need for the development of interagency strategies in addition to policy underpinned by more nuanced understandings of vulnerability in bereavement, post‐caring.

中文翻译:

澳大利亚丧亲者的社会福利需求:姑息治疗和福利工作者的见解的影响

在限制生命的疾病背景下提供非正式护理后的丧亲之痛的实践和研究影响了对个人和心理的重视。需要考虑通过交叉的社会和结构性不平等来塑造丧亲之痛的可能性;并且应该包括对与政府机构和社会政策的互动的理解。这项定性研究采用解释性描述来探讨姑息治疗工作者和福利部门工作人员如何看待和处理在西悉尼接受政府收入支持或住房援助的丧亲者的经历和需求,该地区与公认的社会经济劣势相关。共有 21 名公共卫生服务机构的姑息治疗工作者和两个政府社会福利机构的福利工作者参与了深度访谈。使用框架分析对数据进行分析。与会者强调了可能影响丧亲之痛的社会福利政策和相关互动,可能与财务、住房和就业不稳定有关。探索了被认为影响福利需求导航的个人、人际关系和结构因素,以及工人设想的所需专业和结构变化。由于资本形式有限,处于弱势地位的照顾者可能会遇到困难,从而加剧他们在丧亲之痛中的不稳定。在因限制生命的疾病而死亡后,交易性组织文化以及以孤立方式运作的卫生和福利机构似乎会增加护理人员的结构性负担。姑息护理和福利工作者还将他们与失去亲人的护理人员的工作元素与他们自己的无助、沮丧和痛苦的经历联系起来。调查结果表明,除了以对丧亲之痛、事后照顾中的脆弱性更细致的理解为基础的政策之外,还需要制定机构间战略。
更新日期:2021-04-29
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