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Parental Cancer-related Information Seeking, Health Communication and Satisfaction with Medical Providers of Childhood Cancer Survivors: Differences by Race/Ethnicity and Language Preference
Journal of Health Communication ( IF 2.742 ) Pub Date : 2021-03-10 , DOI: 10.1080/10810730.2021.1895919
Carol Y Ochoa 1 , Kimberly A Miller 1, 2 , Lourdes Baezconde-Garbanati 1 , Rhona I Slaughter 1 , Ann S Hamilton 1 , Joel E Milam 1
Affiliation  

For childhood cancer survivors (CCS), parents play an important role in communicating with providers and conveying patient’s needs. This exploratory study examined the prevalence of cancer-related information-seeking among parents of CCS and investigated the association between parents’ race/ethnicity and language preference with health communication and satisfaction with child’s medical providers. One hundred and sixty CCS and their parents from two hospitals in Los Angeles County were recruited from the SEER registry. Multivariable logistic regression analyses assessed associations between parents’ race/ethnicity and language preference and their health communication with their child and with their child’s medical care providers. Among the parents, 29% were Spanish-speaking Hispanics, 27% English-speaking Hispanics, and 43% English-speaking non-Hispanics. Regardless of language preference, Hispanic parents were more likely than non-Hispanic parents to receive health information about their CCS’s cancer from hospital sources versus the internet. There was no difference by ethnicity/language in parent satisfaction with their CCS’s medical provider. Spanish-speaking Hispanic parents were more likely to report talking to their CCS about the need for cancer-related follow-up care compared to non-Hispanic English-speaking parents. These findings point to the potential importance of parents’ ethnicity and language for sources of health information and frequency of communication with their CCS about their cancer care.



中文翻译:

儿童癌症幸存者的父母癌症相关信息寻求、健康沟通和对医疗提供者的满意度:种族/民族和语言偏好的差异

对于儿童癌症幸存者(CCS)来说,父母在与提供者沟通和传达患者需求方面发挥着重要作用。这项探索性研究调查了 CCS 父母中癌症相关信息寻求的普遍性,并调查了父母的种族/民族和语言偏好与健康沟通和对儿童医疗提供者满意度之间的关系。从 SEER 登记处招募了来自洛杉矶县两家医院的 160 名 CCS 及其父母。多变量逻辑回归分析评估了父母的种族/民族和语言偏好与他们与孩子以及孩子的医疗保健提供者的健康沟通之间的关联。在父母中,29% 是讲西班牙语的西班牙裔,27% 是讲英语的西班牙裔,43% 是讲英语的非西班牙裔。无论语言偏好如何,西班牙裔父母比非西班牙裔父母更有可能从医院渠道而不是互联网上获得有关 CCS 癌症的健康信息。家长对 CCS 医疗服务提供者的满意度不存在种族/语言差异。与非西班牙裔英语父母相比,讲西班牙语的西班牙裔父母更有可能与 CCS 讨论癌症相关后续护理的需求。这些发现指出了父母的种族和语言对于健康信息来源以及与 CCS 就癌症护理进行沟通的频率的潜在重要性。

更新日期:2021-03-10
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