Objective

To explore the ability of a self-report activity diary to measure the physical activity level (PAL) in female patients with chronic fatigue syndrome (CFS) and whether illness-related complaints, health-related quality of life domains (HRQOL) or demographic factors are associated with discrepancies between self-reported and objectively measured PAL.

Methods

Sixty-six patients with CFS, recruited from the chronic fatigue clinic of a university hospital, and twenty matched healthy controls wore an accelerometer (Actical) for six consecutive days and registered their activities in an activity diary in the same period. Participants' demographic data was collected and all subjects completed the CFS Symptom List (illness-related complaints) daily and Short-Form-36 (HRQOL domains) during the first and second appointment.

Results

A significant, but weak association between the activity diary and Actical was present in patients with CFS (r_s = 0.376 and r_s = 0.352; p < 0.001) and a moderately strong association in healthy controls (r_s = 0.605; and r_s = 0.644; p < 0.001) between week and weekend days, respectively. A linear mixed model identified a negative association between age and the discrepancy between the self-reported and objective measure of PA in both patients with CFS and healthy controls.

Conclusion

The activity diary showed limited ability to register the PAL in female patients with CFS. The discrepancy between measures was not explained by illness-related complaints, HRQOL domains or demographic factors. The activity diary cannot replace objective activity monitoring measured with an accelerometer, but may provide additional information about the perceived activity.

中文翻译：

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慢性疲劳综合征女性患者体育活动水平客观和主观测量差异的探索性研究

客观的

探索自我报告活动日记测量慢性疲劳综合征（CFS）女性患者身体活动水平（PAL）的能力，以及与疾病相关的投诉，与健康相关的生活质量（HRQOL）或人口统计学因素的能力与自我报告的PAL和客观测量的PAL之间的差异有关。

方法

从大学医院的慢性疲劳诊所招募的66名CFS患者和20名相匹配的健康对照者连续六天佩戴了加速度计（Actual），并在同一时期的活动日记中记录了他们的活动。收集参与者的人口统计数据，在第一和第二次约会期间，所有受试者每天都完成CFS症状列表（与疾病有关的投诉）和36号简表（HRQOL域）。

结果

CFS患者的活动日记与Actical之间存在显着但微弱的关联（r _s  = 0.376和r _s  = 0.352；p  <0.001），而在健康对照组中则有中等程度的强关联（r _s  = 0.605;和r _s）  = 0.644； p <0.001）分别在工作日和工作日之间。线性混合模型确定了CFS患者和健康对照者的年龄与PA自我报告和客观测量之间差异之间的负相关关系。

结论

活动日志显示女性CFS患者注册PAL的能力有限。疾病相关的投诉，HRQOL域或人口统计学因素并未解释措施之间的差异。活动日记不能替代用加速度计测量的客观活动监控，但可以提供有关感知活动的其他信息。