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The Italian Aphasia Awareness Survey (IAAS): an online questionnaire about the public knowledge of aphasia in Italy, informative findings
Aphasiology ( IF 2 ) Pub Date : 2021-03-09 , DOI: 10.1080/02687038.2021.1897078
Mauro Viganò 1 , Giulia Gilardone 1 , Dario Cassinelli 1 , Francesca M. Fumagalli 1 , Maria Scialla 1 , Marco Gilardone 1 , Roberta Dameno 2 , Massimo Corbo 1 , Alessia Monti 1
Affiliation  

ABSTRACT

Background

According to surveys conducted in several countries, public awareness and knowledge of aphasia are inadequately low. Persons with aphasia appoint this fact as a relevant environmental barrier.

Aims

The present inquiry aims at analyzing the status of awareness and knowledge about aphasia in Italy.

Methods & Procedures

An original questionnaire was distributed online through a snowball sampling method on the Italian adult population. Respondents were asked if they had heard of the term “aphasia” and subsequently tested on its definition and clinical characteristics. Similar questions regarding “celiac disease” and “Down syndrome” were asked for comparison. Demographic data and information about the source of knowledge were also recorded

Outcomes & Results

Considering 2172 respondents, 62.4% had heard of aphasia, 58.2% showed definition knowledge while 4.6% complete general knowledge. These rates were lower than those for the other medical conditions. Older age, female gender, higher education, and being a health professional were significantly associated with awareness. The questionnaire highlighted poor knowledge about the social and functional consequences of aphasia.

Conclusions

Overall, the rates of aphasia awareness and knowledge were low. Despite health professionals performed better, the level of general knowledge was also poor among these respondents. These preliminary data set the need for further inquiries, undertaking appropriate methodological ameliorations.



中文翻译:

意大利失语症意识调查 (IAAS):关于意大利失语症公众知识的在线问卷调查,信息丰富的调查结果

摘要

背景

根据在几个国家进行的调查,公众对失语症的认识和知识还不够低。失语症患者将此事实视为相关的环境障碍。

目标

本调查旨在分析意大利对失语症的认识和知识状况。

方法和程序

一份原始问卷通过雪球抽样法在线分发给意大利成年人口。受访者被问及是否听说过“失语症”一词,并随后对其定义和临床特征进行了测试。询问有关“乳糜泻”和“唐氏综合症”的类似问题进行比较。还记录了人口统计数据和有关知识来源的信息

结果和结果

在2172名受访者中,62.4%听说过失语症,58.2%有定义知识,4.6%完成一般知识。这些比率低于其他医疗条件的比率。年龄较大、女性、高等教育和卫生专业人员与意识显着相关。调查问卷强调了对失语症的社会和功能后果知之甚少。

结论

总体而言,失语症的知晓率和知识率很低。尽管卫生专业人员表现更好,但这些受访者的一般知识水平也很差。这些初步数据表明需要进一步调查,采取适当的方法改进。

更新日期:2021-03-09
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