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Thriving alongside cystic fibrosis: Developing a grounded theory of empowerment in children and young people with cystic fibrosis during key life transitions
Child: Care, Health and Development ( IF 1.8 ) Pub Date : 2021-02-27 , DOI: 10.1111/cch.12860
Naomi H Fairweather 1, 2 , Fergal W Jones 1, 2 , Sally A Harris 3 , Martha Deiros Collado 4 , Amy Shayle 4
Affiliation  

Although the importance of patient empowerment is increasingly recognized, little is known about empowerment in children and young people (CYP) with long-term conditions. Empowerment may be particularly important in CYP with cystic fibrosis (CF) due to high treatment burden and limited opportunities for peer support.

中文翻译:

与囊性纤维化一起茁壮成长:在关键的生活转变过程中,为患有囊性纤维化的儿童和年轻人发展赋权的扎根理论

尽管患者赋权的重要性日益得到认可,但对患有长期疾病的儿童和年轻人 (CYP) 的赋权知之甚少。由于高治疗负担和同伴支持的机会有限,在患有囊性纤维化 (CF) 的 CYP 患者中,赋权可能尤为重要。
更新日期:2021-02-27
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