Abstract

This research aimed to develop an evidence-based and community-defined model for multiple stakeholders such as community leaders, service providers, and policymakers to adaptively implement to improve the quality of life of these children and their families. To inform this model, results from three previous studies conducted by the authors were combined with the results from the current qualitative investigation. Overall over 100 key informants including parents, community leaders, and government and non-government officials aged from 18 to 63 years old participated in interview and focus group sessions. The results were then analysed thematically. The resultant model consists of 41 activities across 7 sectors, including health, education, and the economy, plus a central multi-sectoral component. Taken together, this comprehensive list of activities aims to support young children’s development, increase family competencies, and strengthen social inclusion for families with children with disabilities.

• Points of interest

• Young children with disabilities are among the most vulnerable population in the world.

• A range of evidence-informed activities exists to help young children with disabilities in low and middle-income countries with settings similar to that in Indonesia.

• We united these activities together with additional suggestions through a series of investigations to generate an evidence-informed and community-defined model for improving the quality of life of these children and their families.

• We hope that this article assists researchers and practitioners to adaptively implement such approaches to improve the lives of young children with disabilities.

摘要

本研究旨在为社区领袖、服务提供者和政策制定者等多个利益相关者开发一个以证据为基础和社区定义的模型，以便适应性地实施以改善这些儿童及其家庭的生活质量。为了为该模型提供信息，作者将先前进行的三项研究的结果与当前定性调查的结果相结合。共有 100 多位 18 至 63 岁的家长、社区领袖、政府和非政府官员等关键知情人参加了访谈和焦点小组会议。然后对结果进行主题分析。由此产生的模型包括 7 个部门的 41 项活动，包括卫生、教育和经济，以及一个中央多部门组成部分。综合起来，

• 兴趣点

• 残疾幼儿是世界上最脆弱的人群之一。

• 存在一系列循证活动来帮助中低收入国家的残疾幼儿，这些国家的环境与印度尼西亚相似。

• 我们通过一系列调查将这些活动与其他建议结合起来，以生成一个循证和社区定义的模型，以改善这些儿童及其家庭的生活质量。

• 我们希望这篇文章能帮助研究人员和从业者适应性地实施这些方法，以改善残疾幼儿的生活。