Introduction

Individuals with cystic fibrosis (CF) are at increased risk for anxiety and depression, with negative consequences for adherence, health, and quality of life. New approaches to prevent and treat anxiety and depression that are tailored to the concerns of this population are needed. A CF-specific internet-based cognitive-behavioral therapy (CBT) intervention was developed to increase access to evidence-based mental health care and decrease cost and burden of care for people with CF.

Objective

To evaluate the usability and acceptability of “eHealth CF-CBT,” an internet-based program integrating therapist-guided online self-management modules with in-person or virtual sessions.

Methods

Dutch adults with CF (N = 16) and CF health care providers (N = 16) systematically tested all sessions of the eHealth CF-CBT program, provided qualitative feedback, and completed measures including eHealth Impact Questionnaire (eHIQ), and System Usability Scale (SUS).

Results

Patient and provider ratings of their overall impression of the eHealth CF-CBT program were high, with scores (mean; SD) of 8.3; 0.6 and 8.2; 0.8 respectively on a 10-point scale. Mean ratings of usability by patients (77.0/100) and providers (73.4/100) surpassed the SUS cut point for good favorability. Ratings (pooled mean; SD) on the assessed eHIQ domains Motivation and Confidence to Act (71.3; 10.0), Information and Presentation (78.9; 9.6), and Identification (62.0; 15.1) were positive, as were assessments of specific elements of session content and format.

Conclusions

eHealth CF-CBT is the first therapist-guided internet-delivered CBT-based intervention for adults with CF. Initial evaluation with key stakeholders demonstrated high levels of acceptability and usability and provided input that was integrated to strengthen the program. Effectiveness testing in the Netherlands will be the next step, as well as future international adaptation and dissemination.

中文翻译：

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开发和评估基于互联网的针对囊性纤维化成人焦虑和抑郁的认知行为疗法干预（eHealth CF-CBT）：一项国际合作

介绍

患有囊性纤维化 (CF) 的人患焦虑和抑郁的风险增加，对依从性、健康和生活质量产生负面影响。需要针对这一人群的担忧量身定制的预防和​​治疗焦虑和抑郁的新方法。开发了一种特定于 CF 的基于互联网的认知行为疗法 (CBT) 干预措施，以增加获得基于证据的心理健康护理的机会，并降低 CF 患者的护理成本和负担。

客观的

评估“eHealth CF-CBT”的可用性和可接受性，这是一个基于互联网的计划，将治疗师指导的在线自我管理模块与面对面或虚拟会话相结合。

方法

患有 CF ( N = 16) 和 CF 医疗保健提供者 (N = 16) 的荷兰成年人 系统地测试了 eHealth CF-CBT 计划的所有课程，提供了定性反馈，并完成了包括 eHealth 影响问卷 (eHIQ) 和系统可用性量表在内的测量（SUS）。

结果

患者和提供者对 eHealth CF-CBT 计划的总体印象评分很高，得分（平均值；SD）为 8.3；0.6 和 8.2；0.8 分，10 分制。患者 (77.0/100) 和提供者 (73.4/100) 对可用性的平均评分超过了 SUS 的良好好感度临界点。评估的 eHIQ 领域的评分（汇总平均值；SD） 行动的动机和信心（71.3；10.0）、信息和演示（78.9；9.6）和识别（62.0；15.1）是积极的，对会议特定要素的评估也是如此内容和格式。

结论

eHealth CF-CBT 是第一个由治疗师指导的基于互联网的 CBT 干预，针对 CF 成人。与主要利益相关者的初步评估显示了高度的可接受性和可用性，并提供了整合以加强该计划的投入。下一步将在荷兰进行有效性测试，以及未来的国际适应和传播。