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Balancing information governance obligations when accessing social care data for collaborative research
Records Management Journal ( IF 0.8 ) Pub Date : 2019-03-11 , DOI: 10.1108/rmj-09-2018-0029
Malkiat Thiarai , Sarunkorn Chotvijit , Stephen Jarvis

Purpose There is significant national interest in tackling issues surrounding the needs of vulnerable children and adults. This paper aims to argue that much value can be gained from the application of new data-analytic approaches to assist with the care provided to vulnerable children. This paper highlights the ethical and information governance issues raised in the development of a research project that sought to access and analyse children’s social care data. Design/methodology/approach The paper documents the process involved in identifying, accessing and using data held in Birmingham City Council’s social care system for collaborative research with a partner organisation. This includes identifying the data, its structure and format; understanding the Data Protection Act 1998 and 2018 (DPA) exemptions that are relevant to ensure that legal obligations are met; data security and access management; the ethical and governance approval process. Findings The findings will include approaches to understanding the data, its structure and accessibility tasks involved in addressing ethical and legal obligations and requirements of the ethical and governance processes. Originality/value The aim of this research is to highlight the potential use of use new data-analytic techniques to examine the flow of children’s social care data from referral, through the assessment process, to the resulting service provision. Data held by Birmingham City Council are used throughout, and this paper highlights key ethical and information governance issues which were addressed in preparing and conducting the research. The findings provide insight for other data-led studies of a similar nature.

中文翻译:

在访问社会护理数据以进行协作研究时平衡信息治理义务

目的解决围绕弱势儿童和成人需求的问题引起了国家的极大兴趣。本文旨在论证说,通过应用新的数据分析方法来帮助弱势儿童提供照料可以获得很多价值。本文重点介绍了在研究项目的开发中提出的道德和信息治理问题,该项目旨在访问和分析儿童的社会护理数据。设计/方法/方法本文记录了识别,访问和使用伯明翰市议会社会护理系统中的数据与合作伙伴组织进行协作研究所涉及的过程。这包括识别数据,其结构和格式;了解与确保遵守法律义务有关的1998年和2018年《数据保护法》(DPA)豁免;数据安全和访问管理;道德和治理批准流程。调查结果调查结果将包括理解数据,数据结构和可访问性任务的方法,这些数据涉及解决道德和法律义务以及道德和治理流程的要求。原创性/价值这项研究的目的是强调潜在的使用新的数据分析技术来检查从转介到评估过程到提供服务的儿童社会护理数据的流动。伯明翰市议会拥有的数据会在整个过程中使用,本文重点介绍了在准备和进行研究时要解决的关键道德和信息治理问题。这些发现为其他类似性质的数据主导研究提供了见识。
更新日期:2019-03-11
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