ABSTRACT

Introduction: Participation in childhood Acquired Brain Injury (ABI) lacks clarity in definition and determinants influencing long-term outcome. This paper aims to investigate and identify the factors that impact long-term outcomes, and prioritize the measures that focus on and endorse children, young people, and their family’s concept of participation.

Methods: A scoping review was carried out using research literature and non-research data sources including data review, child/family interviews, and expert consultation.

Results: Six peer-reviewed papers sourced. Families reported that participation for the whole family is important and recovers in a non-linear manner after rehabilitation. Experts agreed the priority and complexity of participation following severe ABI.

Conclusion: Review highlights that regaining participation through the attendance at, and the engagement in life situations, for children after severe ABI, is important, complex and is affected by many factors.

Future research requires a flexible approach to understand participation and inform future targeted interventions.

摘要

简介：参与儿童获得性脑损伤 (ABI) 的定义和影响长期结果的决定因素缺乏明确性。本文旨在调查和确定影响长期结果的因素，并优先考虑和支持儿童、年轻人及其家庭的参与概念的措施。

方法：使用研究文献和非研究数据源进行范围审查，包括数据审查、儿童/家庭访谈和专家咨询。

结果：六篇经过同行评审的论文来源。家庭报告说，整个家庭的参与很重要，并且在康复后以非线性方式恢复。专家同意严重 ABI 后参与的优先级和复杂性。

结论：综述强调，对于严重 ABI 后的儿童，通过出席和参与生活情境重新参与是重要的、复杂的，并且受许多因素的影响。

未来的研究需要一种灵活的方法来理解参与并告知未来的有针对性的干预措施。