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Thinking differently? Autism and quality of life
Tizard Learning Disability Review Pub Date : 2019-04-01 , DOI: 10.1108/tldr-05-2018-0014
Suzanne Jane Smith 1 , Jane E. Powell 2 , Neil Summers 2 , Susan Roulstone 3
Affiliation  

Purpose: This study explores perceptions of Quality of Life (QOL) of people with a dual diagnosis of learning disability and autism to facilitate a better understanding for clinical practice and service provision. Design/methodology/approach: Mixed methods were used to gain perceptions of QOL from 20 individuals referred to their local diagnostic service. Individuals completed questionnaires and participated in in-depth interviews which were thematically analysed. Findings: Subjective wellbeing scores were lower than those found in previous research. Social interaction was raised extensively with participants describing both positive and negative perceptions. The need for tailored social support and the value of individual control over environment were raised. Research Limitations/Implications: The study was small in scale and limited to subjects who had been referred for a diagnostic service. The study identified the need for further study, particularly in relation to the social relationships domain of QoL, and the impact of stress and anxiety. Practical Implications: Social Implications: Originality/Value: This study demonstrated that it is possible to access views from this group and that these views are nuanced. It suggests differences between reported QoL in people with learning disabilities who are and who are not autistic. Service design and individual approaches could be improved by a better understanding of these differences.

中文翻译:

想法不同?自闭症与生活质量

目的:本研究探讨学习障碍和自闭症双重诊断的人对生活质量 (QOL) 的看法,以促进对临床实践和服务提供的更好理解。设计/方法/途径:使用混合方法从转介到当地诊断服务机构的 20 个人那里获得对 QOL 的看法。个人完成问卷并参与主题分析的深入访谈。结果:主观幸福感得分低于先前研究中发现的得分。参与者描述了积极和消极的看法,广泛地提出了社会互动。提出了对量身定制的社会支持的需求和个人对环境控制的价值。研究限制/影响:该研究规模较小,仅限于接受诊断服务的受试者。该研究确定了进一步研究的必要性,特别是在生活质量的社会关系领域以及压力和焦虑的影响方面。实际影响: 社会影响: 原创性/价值:本研究表明,可以访问来自该群体的观点,并且这些观点是细微差别的。它表明患有和非自闭症的学习障碍者报告的 QoL 之间存在差异。通过更好地理解这些差异,可以改进服务设计和个人方法。实际影响: 社会影响: 原创性/价值:本研究表明,可以访问来自该群体的观点,并且这些观点是细微差别的。它表明患有和非自闭症的学习障碍者报告的 QoL 之间存在差异。通过更好地理解这些差异,可以改进服务设计和个人方法。实际影响: 社会影响: 原创性/价值:本研究表明,可以访问来自该群体的观点,并且这些观点是细微差别的。它表明患有和非自闭症的学习障碍者报告的 QoL 之间存在差异。通过更好地理解这些差异,可以改进服务设计和个人方法。
更新日期:2019-04-01
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