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Commentary on “Thinking differently? Autism and quality of life”
Tizard Learning Disability Review ( IF 0.5 ) Pub Date : 2019-04-01 , DOI: 10.1108/tldr-02-2019-0006
Krysia Emily Waldock

The purpose of this paper is to describe the possible impact of normalisation on the perceptions of quality of life (QoL) and the impact of this association on the research to date. This commentary reflects on the implications of limiting QoL research to autistic people who are perceived to be “more able”.,This commentary discusses the implications of undertaking QoL research in the field of autism.,This commentary argues for further consideration of the autistic voice in QoL research. Researcher epistemology and life experience, including experience of autistic people, is examined in terms of how QoL might be perceived and attributed. Further participatory research in the field of quality of life of autistic people, including those with a learning disability and engagement with a variety of autistic people, is called for.,This commentary suggests that the existing definitions of QoL, founded on principles of normalisation, may not be completely applicable to autistic people, and that new ways of both defining and measuring QoL might be needed.

中文翻译:

评论“不同的想法?自闭症与生活质量”

本文的目的是描述正常化对生活质量 (QoL) 感知的可能影响以及这种关联对迄今为止研究的影响。这篇评论反映了将 QoL 研究限制在被认为“更有能力”的自闭症人群的影响。,这篇评论讨论了在自闭症领域进行 QoL 研究的影响。,这篇评论主张进一步考虑自闭症的声音在 QoL 研究中。研究人员的认识论和生活经历,包括自闭症患者的经历,根据 QoL 的感知和归因方式进行了检查。需要在自闭症患者的生活质量领域进行进一步的参与性研究,包括那些有学习障碍的人和与各种自闭症患者接触的人。
更新日期:2019-04-01
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