Siblings of individuals with disabilities provide the most long-term care for an individual with disabilities, yet research on their experiences is limited. A majority of previous research focuses on young siblings from a parent’s viewpoint. The purpose of this paper is to investigate the effects of having a sibling with a disability and behaviour described as challenging from adult siblings’ perspectives.,Six adult siblings of individuals with intellectual disabilities and behaviour described as challenging were interviewed about their responsibilities pertaining to their sibling, family relationships and the support that had been provided. The study used semi-structured interview methodology based on interview questions from previous research.,Siblings described a multifaceted impact on their lives. They attributed aspects of their career choices, personal characteristics and family dynamics to having a sibling with a disability and behaviour that challenges. Siblings stressed the inadequate support that they have received throughout their lives. They are, in a sense, the invisible carers for their sibling but they are perceived by society as just a sibling. Siblings described an optimistic perspective on their lives, even though they expressed the difficulties that they have faced.,Due to the recruitment process and limited demographic of the participants, the findings may not be generalisable to the general population of siblings of individuals with disabilities. Further research should focus on a broader population.,This study reinforces the need for more support for siblings of individuals with disabilities in childhood and in adulthood.,This paper provides perspectives of individuals that have not been fully represented in previous research.

中文翻译：

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兄弟姐妹的观点：有一个学习障碍和行为被描述为具有挑战性的兄弟姐妹的经历

残障人士的兄弟姐妹为残障人士提供最长期的护理，但对其经历的研究有限。以前的大多数研究都从父母的角度关注年幼的兄弟姐妹。本文的目的是从成年兄弟姐妹的角度调查有残疾和行为被描述为具有挑战性的兄弟姐妹的影响。 六名智障和行为被描述为具有挑战性的个体的成年兄弟姐妹接受了采访，了解他们对自己的责任兄弟姐妹、家庭关系和所提供的支持。该研究使用基于先前研究中的访谈问题的半结构化访谈方法。兄弟姐妹描述了对他们生活的多方面影响。他们将他们的职业选择、个人特征和家庭动态的各个方面归因于有一个有残疾和行为挑战的兄弟姐妹。兄弟姐妹们强调他们一生所得到的支持不足。从某种意义上说，他们是兄弟姐妹的隐形照顾者，但他们被社会视为只是兄弟姐妹。兄弟姐妹描述了他们对生活的乐观看法，尽管他们表达了他们所面临的困难。由于招募过程和参与者的人口有限，调查结果可能无法推广到残疾人兄弟姐妹的一般人群。进一步的研究应该关注更广泛的人群。,这项研究强调了在儿童期和成年期为残疾人的兄弟姐妹提供更多支持的必要性。