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Restoring trust into the NHS: promoting data protection as an ‘architecture of custody’ for the sharing of data in direct care
International Journal of Law and Information Technology Pub Date : 2020-08-20 , DOI: 10.1093/ijlit/eaaa014
Subhajit Basu , Audrey Guinchard

Abstract
Aiming to provide better, more personalized care, by harnessing the power of digitalization, the National Health Service (NHS) has employed a strategy of sharing its patients’ information with the private sector, raising questions as to whether it can be trusted as a custodian of its patients’ data. The development of the Streams application by DeepMind, a subsidiary of Google Health UK, illustrates the dichotomy between, on the one hand, the need to use innovative technologies to provide effective direct care and, on the other hand, the obligation to protect patients’ rights and interests in their health data. This article focuses on an under-explored aspect of the Streams debate: the NHS’s processing of health data in direct care. It argues that the data protection framework is best viewed as an architecture of custody, where all participants in the framework have a custodial role to play and should collaborate to ensure the balance between the free flow of data and the data subjects’ rights and interests.


中文翻译:

恢复对NHS的信任:将数据保护作为直接监护中数据共享的“托管架构”

摘要
为了利用数字化的力量提供更好,更个性化的护理,国家卫生服务局(NHS)采取了与私营部门共享患者信息的策略,从而引发了人们对其是否可以作为托管人的信任的问题。其患者数据。Google Health UK的子公司DeepMind开发的Streams应用程序说明了两分法,一方面是需要使用创新技术来提供有效的直接护理,另一方面是有义务保护患者的健康。他们的健康数据中的权益。本文着重探讨Streams辩论中一个尚未开发的方面:NHS在直接护理中对健康数据的处理。它认为,最好将数据保护框架视为托管的体系结构,
更新日期:2020-08-20
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