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Families of children on the autism spectrum: experience of daily life and impact of parent education
Support for Learning ( IF 0.6 ) Pub Date : 2020-05-01 , DOI: 10.1111/1467-9604.12300
Jasmina Stošić , Jasmina Frey Škrinjar , David Preece

Information and support for families of children on the autism spectrum is limited in south-east Europe. A three-year project, Equity and Social Inclusion Through Positive Parenting (ESIPP), was established to develop and provide parent education (PE) in autism for families in Croatia, Cyprus and North Macedonia. This paper presents findings from Croatia regarding family life and the impact of PE. Data were collected via pre- and post-PE questionnaires and semi-structured interviews. Participants discussed the impact of autism on family life, the difficulty of obtaining a diagnosis, the importance of family support (and varying experience of formal support), common experiences of stigma and social exclusion and concerns for the future. The value and benefit of PE is identified, and recognition of its impact within Croatia has ensured its ongoing provision.

中文翻译:

自闭症谱系儿童的家庭:日常生活经验和家长教育的影响

在东南欧,对自闭症谱系儿童家庭的信息和支持是有限的。建立了一个为期三年的项目,通过积极养育实现公平和社会包容 (ESIPP),旨在为克罗地亚、塞浦路斯和北马其顿的家庭开发和提供自闭症家长教育 (PE)。本文介绍了克罗地亚关于家庭生活和体育运动影响的调查结果。数据是通过 PE 之前和之后的问卷调查和半结构化访谈收集的。参与者讨论了自闭症对家庭生活的影响、获得诊断的难度、家庭支持的重要性(以及不同的正式支持经验)、耻辱和社会排斥的常见经历以及对未来的担忧。确定 PE 的价值和好处,
更新日期:2020-05-01
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