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Children with SEND and the emotional impact on parents
British Journal of Special Education ( IF 0.9 ) Pub Date : 2018-12-01 , DOI: 10.1111/1467-8578.12240
John Holland , Gabrielle Pell ,

Children bring joy, new experiences and challenges into the lives of their families, and the focus of this article is on the often unrecognised emotional challenges and stigma experienced by parents of children with special educational needs and/or disabilities (SEND). This study involved a random sample group of 240 parents using a service in the Hull and East Riding areas of the UK. These parents filled in a questionnaire, the results of which showed that there were points of particular stress for some families, often involving their initial concerns when their children's difficulties were unrecognised, the diagnosis itself, and then obtaining support. In addition, for some families, this stress led to the breakdown of parental relationships. Significant areas of additional stress included parents having feelings of guilt and emotional strain, with experiences of isolation for the family and negative impacts on parental mental health. Furthermore, some parents revealed incidences of stigma and a refusal to accept diagnoses and concerns, even from within the wider family. Likewise, some parents found that family and friends were not sympathetic or supportive. Finally, a number of parents also described detrimental impacts on siblings and expressed concerns about the education of and future outcomes for their child. [ABSTRACT FROM AUTHOR]

中文翻译:

有SEND的孩子及其对父母的情感影响

孩子们给家庭生活带来了欢乐,新的经历和挑战,本文的重点是具有特殊教育需求和/或残疾的孩子的父母经常遭受无法识别的情感挑战和污名(SEND)。这项研究涉及一个随机样本组,由240名父母组成,在英国的赫尔和东骑马地区使用一项服务。这些父母填写了一份调查表,调查结果表明,一些家庭面临特别压力,通常在他们的孩子的困境得不到承认时首先涉及他们最初的担忧,即诊断自己,然后获得支持。此外,对于某些家庭来说,这种压力导致父母关系破裂。承受额外压力的重要方面包括父母有内感和情绪紧张,对家庭孤立的经历以及对父母心理健康的负面影响。此外,一些父母甚至在更广泛的家庭中也发现了耻辱的发生,并且拒绝接受诊断和关注。同样,一些父母发现家人和朋友也没有同情或支持。最后,一些父母还描述了对兄弟姐妹的有害影响,并对孩子的教育和未来的结果表示关注。[作者的摘要] 一些父母发现家人和朋友没有同情或支持。最后,一些父母还描述了对兄弟姐妹的有害影响,并对孩子的教育和未来的结果表示关注。[作者的摘要] 一些父母发现家人和朋友没有同情或支持。最后,一些父母还描述了对兄弟姐妹的有害影响,并对孩子的教育和未来的结果表示关注。[作者的摘要]
更新日期:2018-12-01
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