ABSTRACT

The article reflects on and explores a daughter's experience of being the relative to a frail, sick elderly mother in Norway. Recent reforms of the Norwegian healthcare services have had a major impact on the relationship between patients, their families and healthcare workers. The daughter's experiences elucidate the failure of the primary healthcare service to interact with the specialist health service and the patients’ family. The article has a qualitative design and is based on one of the authors’ autoethnographic accounts. The researchers are inspired by collaborative autoethnography (CAE). The co-authors reflect on and explore the daughter's experiences in order to increase the understanding of the interplay between personal and experiential aspects on the one hand and the social, cultural and political context on the other. The article is evocative and analytical, and investigates critically the ways in which system routines, procedures and practices restrict the opportunities for real user involvement and partnership. We address frail older people in transition between various levels of the health service and explore the opportunities of the relative to voice their expectations for user participation in nursing care.

摘要

这篇文章回顾并探讨了一个女儿在挪威与一个脆弱，生病的年迈母亲的亲戚的经历。挪威医疗保健服务的最新改革对患者，他们的家人和医护人员之间的关系产生了重大影响。女儿的经历阐明了基本医疗服务未能与专科医疗服务和患者家属互动的情况。本文具有定性设计，并基于作者的自传民族志之一。研究人员受到协作式民族志（CAE）的启发。合著者对女儿的经历进行了反思和探索，以一方面增进对个人和体验方面以及另一方面的社会，文化和政治背景之间相互作用的理解。本文具有启发性和分析性，并严谨地研究了系统例程，过程和实践如何限制实际用户参与和建立伙伴关系的机会。我们针对在各个级别的医疗服务之间过渡的脆弱的老年人，并探索亲戚表达其对用户参与护理服务的期望的机会。