Abstract The existence of a child in a family is often a pleasant event. But a child with physical or mental disabilities can put a heavy burden on parents. The purpose of this study is a phenomenological investigation of the experiences of Iranian mothers of children suffering from cerebral palsy (CP). A qualitative study is done using hermeneutic phenomenology as designed by Van Manen. The study participants are Iranian mothers living in Yazd who have a child with CP. The themes identified in interviews with eight participants are as follows: feelings (neutral, positive, and negative) and self-expectation (efforts to take a better care of ones’ children), levels of relations (self-isolation and relations with counterparts), abd levels of supports (being abandoned by one’s husbands’ family and others, lack of support from the child’s father, others’ interference in taking care of the child, being looked down, and lack of emotional and financial supports from husband’s family). At present, mothers are uncertain about the future. Facilities for rehabilitation and treatment (insufficient facilities and inadequate training of the family) and level of satisfaction with caring systems (dissatisfaction with government agencies and satisfaction with private treatment centers) were considered as lived space. These lived experiences have led to individualization of care.

中文翻译：

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伊朗脑瘫儿童母亲的生活经历：现象学研究

摘要 一个家庭中有一个孩子，往往是一件令人愉快的事情。但身体或精神残疾的孩子会给父母带来沉重的负担。本研究的目的是对患有脑瘫 (CP) 儿童的伊朗母亲的经历进行现象学调查。使用 Van Manen 设计的解释学现象学进行定性研究。研究参与者是居住在亚兹德的伊朗母亲，她们的孩子患有 CP。在对八名参与者的采访中确定的主题如下：感觉（中性、积极和消极）和自我期望（努力更好地照顾自己的孩子）、关系水平（自我隔离和与同行的关系） , abd 水平的支持（被丈夫的家人和其他人抛弃，缺乏孩子父亲的支持，别人干涉照顾孩子，被人瞧不起，缺乏丈夫家人的情感和经济支持）。目前，妈妈们对未来充满不确定性。康复和治疗设施（设施不足和家庭培训不足）和对护理系统的满意度（对政府机构的不满和对私人治疗中心的满意度）被视为居住空间。这些生活经历导致了护理的个性化。康复和治疗设施（设施不足和家庭培训不足）和对护理系统的满意度（对政府机构的不满和对私人治疗中心的满意度）被视为居住空间。这些生活经历导致了护理的个性化。康复和治疗设施（设施不足和家庭培训不足）和对护理系统的满意度（对政府机构的不满和对私人治疗中心的满意度）被视为居住空间。这些生活经历导致了护理的个性化。