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A phenomenological content analysis of online support seeking by siblings of people with autism
Journal of Family Psychotherapy Pub Date : 2017-11-28 , DOI: 10.1080/08975353.2017.1395256
Rachael A. Dansby 1 , Brie Turns 2 , Jason B. Whiting 3 , Jeffrey Crane 4
Affiliation  

ABSTRACT With the sharp increase in diagnosis rates of autism spectrum disorder, more family members are caring for and being raised with individuals with autism. Although research has examined parents’ experiences of raising a child with autism, more knowledge is needed regarding neuro-typical siblings’ experiences. One way to understand siblings’ experiences is to hear their own recollections as shared through online peer forums. The purpose of this phenomenological content analysis was to understand the unfiltered experiences of neuro-typical adults who grew up with a sibling with autism spectrum disorder as they sought support online. Secondary analysis of online blog posts generated four themes: Unique family relationships; Complex spectrum of emotional experiences; Autism influencing life trajectories; A spectrum of coping strategies. Results provide useful implications for professionals working with these families and for researchers studying autism.

中文翻译:

自闭症患者兄弟姐妹在线寻求支持的现象学内容分析

摘要 随着自闭症谱系障碍诊断率的急剧上升,越来越多的家庭成员开始照顾自闭症患者并与他们一起抚养。尽管研究调查了父母抚养自闭症儿童的经历,但需要更多关于神经典型兄弟姐妹经历的知识。了解兄弟姐妹经历的一种方法是聆听他们通过在线同行论坛分享的回忆。这种现象学内容分析的目的是了解与患有自闭症谱系障碍的兄弟姐妹一起长大的神经典型成年人在网上寻求支持时未经过滤的经历。在线博客文章的二次分析产生了四个主题: 独特的家庭关系;情绪体验的复杂范围;自闭症影响生活轨迹;一系列应对策略。
更新日期:2017-11-28
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