ABSTRACT Grounded theory analysis was used to identify common factors that contributed to the adjustment process of mothers following their child’s diagnosis of Down syndrome, and how they ultimately arrived at new perspectives of the diagnosis. Qualitative interviews were conducted and participant narratives were filled with references of: “shock and fear,” “not-knowing,” being negatively impacted by professionals, and encouragement they received from others. The final model included: initial reactions, barriers and buffers, and acquiring a new perspective. Mothers emphasized the benefits of raising a child with an extra chromosome and ultimately experiencing personal “growth” on this parenting journey. Implications for providers who interface with families living with children of Down syndrome were presented.

中文翻译：

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唐氏综合症患儿母亲适应过程的共同因素：一项定性研究

摘要 扎根理论分析被用于确定在孩子被诊断为唐氏综合症后母亲调整过程的共同因素，以及他们如何最终达到诊断的新视角。进行了定性访谈，参与者的叙述充满了以下内容：“震惊和恐惧”、“不知道”、受到专业人士的负面影响，以及他们从他人那里得到的鼓励。最终模型包括：初始反应、障碍和缓冲以及获得新视角。母亲们强调了抚养一个拥有额外染色体的孩子并最终在这个育儿之旅中体验个人“成长”的好处。介绍了与有唐氏综合症儿童的家庭接触的提供者的意义。