ABSTRACT

The purpose of this Delphi pilot study was to 1) identify potential benefits to people who experienced perinatal loss if a term were established; 2) develop a term for people who experienced a perinatal loss because, at present, no term exists; and, 3) identify areas of consensus and contention between perinatal loss professionals and parents when considering terminology. Fifty-five participants (perinatal loss professionals, n = 33; perinatally bereaved parents, n = 22) proposed, reviewed, and rated terms through three rounds of surveys until bereaved parent was selected. Top terms were equally preferred between parents and professionals and, in general, participants described benefits to term development. Findings provide the perinatal loss community a first step in considering terminology.

摘要

这项Delphi初步研究的目的是：1）如果确定了期限，将确定对经历围产期丧失的人的潜在好处；2）为因目前没有术语而遭受围产期丧失的人们制定一个术语；3）在考虑术语时，确定围产期损失专业人员与父母之间的共识和争论领域。通过三轮调查，对55名参与者（围产期损失专业人士，n = 33；围产期丧亲的父母，n = 22）提出了建议，并对其进行了评估和评分，直到选择了丧亲的父母。父母和专业人员之间同样优先选择顶级术语，并且总体而言，参与者描述了术语开发的好处。研究结果为围产期流失社区提供了考虑术语的第一步。