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Seizure detection devices: Exploring caregivers’ needs and wishes
Epilepsy & Behavior ( IF 2.6 ) Pub Date : 2021-03-01 , DOI: 10.1016/j.yebeh.2020.107723
Anouk van Westrhenen , Tessa Souhoka , Maaike E. Ballieux , Roland D. Thijs

INTRODUCTION User preferences for seizure detection devices (SDDs) have been previously assessed using surveys and interviews, but these have not addressed the latent needs and wishes. Context mapping is an approach in which designers explore users' dreams and fears to anticipate potential future experiences and optimize the product design. METHODS A generative group session was held using the context mapping approach. Two types of nocturnal SDD users were included: three professional caregivers at a residential care facility and two informal caregivers of children with refractory epilepsy and learning disabilities. Participants were invited to share their personal SDD experiences and briefed to make their needs and wishes explicit. The audiotaped session was transcribed and analyzed together with the collected material using inductive content analysis. The qualitative data was classified by coding the content, grouping codes into categories and themes, and combining those into general statements (abstraction). RESULTS "Trust" emerged as the most important theme, entangling various emotional and practical factors that influence caregiver's trust in a device. Caregivers expressed several factors that could help to gain their trust in an SDD, including integration of different modalities, insight on all parameters overnight, personal adjustment of the algorithm, recommendation by a neurologist, and a set-up period. Needs regarding alerting seemed to differ between the two types of caregivers in our study: professional caregivers preferred to be alerted only for potentially dangerous seizures, whereas informal caregivers emphasized the urge to be alerted for every event, thus indicating the need for personal adjustment of SDD settings. CONCLUSION In this explorative study, we identified several key elements for nocturnal SDD implementation including the importance of gaining trust and the possibility to adjust SDD settings for different types of caregivers.

中文翻译:

癫痫检测设备:探索护理人员的需求和愿望

简介 先前已使用调查和访谈评估了用户对癫痫检测设备 (SDD) 的偏好,但这些并未解决潜在的需求和愿望。上下文映射是设计师探索用户的梦想和恐惧以预测潜在的未来体验并优化产品设计的一种方法。方法 使用上下文映射方法举行生成小组会议。包括两种类型的夜间 SDD 用户:住宿护理机构的三名专业护理人员和患有难治性癫痫和学习障碍的儿童的两名非正式护理人员。参与者被邀请分享他们个人的 SDD 经验并进行简报,以明确他们的需求和愿望。使用归纳内容分析将录音会话与收集的材料一起转录和分析。定性数据通过对内容进行编码,将代码分为类别和主题,并将它们组合成一般陈述(抽象)来分类。结果 “信任”成为最重要的主题,纠缠了影响看护人对设备信任的各种情感和实际因素。护理人员表达了几个有助于获得他们对 SDD 信任的因素,包括不同模式的整合、一夜之间对所有参数的洞察、算法的个人调整、神经科医生的推荐以及设置期。在我们的研究中,两种类型的护理人员对警报的需求似乎有所不同:专业护理人员更愿意只在有潜在危险的癫痫发作时收到警报,而非正式护理人员则强调对每个事件都发出警报的冲动,因此表明需要对 SDD 设置进行个人调整。结论 在这项探索性研究中,我们确定了夜间 SDD 实施的几个关键要素,包括获得信任的重要性以及为不同类型的护理人员调整 SDD 设置的可能性。
更新日期:2021-03-01
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