The Journal of Spinal Cord Medicine ( IF 1.7 ) Pub Date : 2021-01-19 , DOI: 10.1080/10790268.2020.1860867 Ali Lakhani 1, 2 , Sanjoti Parekh 2, 3 , David P Watling 2 , Peter Grimbeek 4 , Ross Duncan 5 , Susan Charlifue 6 , Elizabeth Kendall 2
Objectives
This study aims to investigate the association between self-reported accessibility and engagement with health services and places in the community, and quality of life (QOL) for people with spinal cord damage (SCD).
Design
Cross-sectional survey.
Setting
Community.
Participants
Two-hundred and sixty-six people with a SCD residing in Australia (Mage = 62.34, SDage = 15.95).
Outcome Measure
The International Spinal Cord Injury Quality of Life Basic Data Set.
Results
Univariate regressions demonstrated that accessing a higher number of places in the community was significantly associated with favorable self-reported psychological health (β = .160, P < .01), physical health (β = .144, P < .01), overall well-being (β = .206, P < .01), and QOL (β = .187, P < .01). In contrast, reporting a higher number of inaccessible places was significantly associated with unfavorable self-reported psychological health (β = −.171, P < .01), physical health (β = −.270, P < .001), overall well-being (β = −.238, P < .001), and QOL (β = −.244, P < .001). Being older and living with injury or onset of damage longer were significantly associated with favorable scores across all outcomes (P < .01) except physical health.
Conclusions
Community engagement can have a considerable impact on the self-reported health and QOL of people with SCD. Interventions aimed at increasing community engagement, particularly for people who have recently experienced SCD are warranted.
中文翻译:
访问和参与社区场所,以及脊髓损伤患者的生活质量
目标
本研究旨在调查自我报告的可及性与参与卫生服务和社区场所之间的关联,以及脊髓损伤 (SCD) 患者的生活质量 (QOL)。
设计
横断面调查。
环境
社区。
参与者
266 名 SCD 患者居住在澳大利亚(M年龄 = 62.34,SD年龄 = 15.95)。
结果测量
国际脊髓损伤生活质量基本数据集。
结果
单变量回归表明,在社区中访问更多的地方与自我报告的心理健康(β = .160,P < .01)、身体健康(β = .144,P < .01)显着相关 ,总体而言幸福感 ( β = .206, P < .01) 和生活质量 ( β = .187, P < .01)。相比之下,报告更多无法进入的地方与不利的自我报告心理健康(β = -.171,P < .01)、身体健康(β = -.270,P < .001)、总体良好显着相关-存在 ( β = -.238, P < .001) 和 QOL ( β = -.244,P < .001)。除身体健康外,年龄较大、受伤或损伤发作时间较长与所有结果的良好得分显着相关(P < .01)。
结论
社区参与会对 SCD 患者自我报告的健康和生活质量产生相当大的影响。旨在增加社区参与的干预措施,特别是对于最近经历过 SCD 的人来说是必要的。