Patient-Reported Outcome (PRO) data are being widely mobilised as a means to implement clinical and governance decision-making systems based on measurement of "what matters to patients". Little is known, however, of how these—datified and calculative—versions of patients' embodied experiences become integrated in healthcare systems to achieve clinical, managerial and political goals. Drawing on data collected on a Danish national initiative to establish a questionnaire bank and a technical infrastructure for PRO data, this paper explores the epistemic and moral tensions of emerging infrastructures for patient-reported data. Our data reveals that those involved in crafting and developing the Danish PRO system seek to encode ‘patient experience’ in the Danish healthcare system by infrastructuring for the clinic, by infrastructuring for the organisation, and by infrastructuring for participation. The infrastructuring efforts in each of these domains involve tensions as the emerging phenomenon of PRO rubs up against existing ways of working clinically and of enhancing and evaluating the quality of clinical care. Thus, while we share critical social science concern about standardisation of patient experience, we show here how those concerns are already pragmatically present in the infrastructuring efforts that patients, clinicians and administrators engage in.

患者报告的结果（PRO）数据被广泛动员，以作为基于“对患者重要”的度量标准来实施临床和治理决策系统的手段。鲜为人知的是，然而，如何患者的具体经历的这些（经过分类和计算的）版本已集成到医疗保健系统中，以实现临床，管理和政治目标。借助丹麦国家倡议建立的调查表库和PRO数据技术基础设施所收集的数据，本文探讨了针对患者报告数据的新兴基础设施的认识和道德张力。我们的数据表明，参与设计和开发丹麦PRO系统的人员通过在基础设施，诊所基础设施和在参与方面的基础设施，试图在丹麦医疗保健系统中编码“患者体验”。由于PRO的新兴现象与现有的临床工作方式以及增强和评估临床护理质量的现有方式相抵触，因此在每个领域中的基础设施工作都涉及紧张关系。因此，尽管我们共享社会科学界对患者体验标准化的关注，但在这里我们展示了这些关注在患者，临床医生和管理人员参与的基础设施工作中已经如何务实地出现。