当前位置: X-MOL 学术Integr. Psych. Behav. Sci. › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Meaning of Disability and Management of its Visibility: a Review of a Qualitative Inquiry on People with Oligodactyly
Integrative Psychological and Behavioral Science ( IF 1.1 ) Pub Date : 2021-01-15 , DOI: 10.1007/s12124-020-09597-2
Masakuni Tagaki 1
Affiliation  

In this commentary, I discuss the contribution of the target article (Sulaeman et al. 2020) and suggest further study in terms of research on psychosocial issues of people with physical disabilities. The authors of the target article qualitatively analyzed the disability-related experiences of people with oligodactyly in a rural village in Indonesia, employing the theories of stigma (Goffman 1963) and illness narrative (Kleinmann 1988). First, the authors effectively found the meanings of the participants’ minor daily experiences by focusing on their physical organ abnormalities. Oligodactyly is visible and mild, rather than other disabilities such as spinal cord injury. A detailed analysis is required to clarify the effect of disability. The authors found that their bodily differences and disorders had multifaceted meanings rather than negative ones only. Another finding was that “God” was referred to as a mediator connecting diverse meanings and places revealing uncertain experiences. Additionally, I discuss that the visibility of oligodactyly depends on the context, and that visible or invisible dichotomy is not suitable for studying psychosocial issues. I argue that people with mild disabilities face the dilemma of disclosing their condition to others. My suggestion for further study is to examine the development of disability meaning from a long-term perspective to elucidate the meaning’s evolution through the participant’s interaction with family, community, and area outside that village. The concept of narratives in cultural psychology, such as Bruner (2002)‘s narrative mode of thinking, was useful; narrative was interfering with the future, past, and present (Valsiner 2007).



中文翻译:

残疾的意义及其可见性的管理:对寡指症患者定性调查的回顾

在这篇评论中,我讨论了目标文章 (Sulaeman et al. 2020) 的贡献,并建议进一步研究身体残障人士的社会心理问题。目标文章的作者采用污名化理论(Goffman 1963)和疾病叙事理论(Kleinmann 1988),定性地分析了印度尼西亚农村中寡指患者的残疾相关经历。首先,作者通过关注参与者的身体器官异常,有效地发现了参与者日常琐碎经历的意义。寡指明显且轻微,而不是脊髓损伤等其他残疾。需要详细分析来阐明残疾的影响。作者发现他们的身体差异和障碍具有多方面的意义,而不仅仅是消极的意义。另一个发现是,“上帝”被称为中介者,将不同的意义和地点联系起来,揭示不确定的经历。此外,我讨论了寡指的可见性取决于上下文,可见或不可见的二分法不适合研究社会心理问题。我认为轻度残疾的人面临着向他人披露他们的病情的困境。我对进一步研究的建议是从长期的角度来考察残疾意义的发展,通过参与者与该村外的家庭、社区和地区的互动来阐明意义的演变。文化心理学中的叙事概念,比如布鲁纳(2002)的叙事思维模式,很有用;叙事干扰了未来、过去和现在(Valsiner 2007)。

更新日期:2021-01-15
down
wechat
bug